Skip to main content

Just my luck

Some of you may have heard me talk or write about Torra lock. This is a medicine that you put down the line to reduce the susceptiblity to line infections. Due to NHS beurocracy you have to have 4 line infections before you are allowed the medication. And lucky ole me, this infection was my 4th. 

The nutrition nurse came down to show me how to do it and to make sure I get the first dose today (you have to have 2 doses before you can be discharged). 

Within seconds of it going into my lovely new Hickman line my legs started to tingle and feel funny. When I said that to the nurse she laid me down, put the oxygen mask on me and ran off. The tingling continued and then the itching started. Just a little tickle of an itch initially but then it built up until I scratched and scratched until it was almost bleeding. 

The nurse came back with Dr7 and Dr8, who were luckily still on the ward. They gave me some steroids and piriton and crossed the torra lock off my drug chart. Apparently I'm the only one of Dr7's patients that he knows to be allergic to it. So that's another medication to add to the allergy list and red wristband. Lucky me!

So that means no torra lock, no magic shield against infections. Let's hope there won't be any more but knowing my luck, it's unlikely! 

NB x
Labels:

Comments

Post a Comment

Popular posts from this blog

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...
Post a Comment
Read more

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...
Post a Comment
Read more

Dexa Scan

The highlight of my day, possibly my week, was leaving the hospital this morning for an appointment at the Treatment Centre, all of a few hundred metres away! I was diagnosed with endometriosis last year after a scan on my bowels picked up an ovarian cyst. For those who don’t know what endometriosis is it’s where tissue similar to the lining of the womb grows in places it shouldn’t. https://www.nhs.uk/conditions/endometriosis/ I didn’t realise I had it because any pain below the waist I always attribute to my bowel problems. The gynaecology consultant said that they would normally carry out a laparoscopy (keyhole surgery) to formally diagnose and see the extent of the endometriosis but because of all my previous bowel surgeries this wasn’t an option. So the decision was made to give me Decaceptyl injections to put me into an early menopause. Doing this stops the womb lining from growing and from contracting when you have a period and therefore helps to reduce the pain. I have the injec...
Post a Comment
Read more