Skip to main content

FaceTime- a blessing or a curse?

The kids came to see me today which was lovely. We had a little picnic outside despite the fact that my whole body felt as though it was made of lead and hurt from top to toe. 

During the picnic I had needed the loo so shuffled slowly there with the kids. "No need to come with me" I told Hubby "of course I will be ok". But I wasn't. 

After being on the loo I felt dizzy and stumbled when I walked. I sat in the restaurant while the kids went to fetch hubby. When he arrived I stood up to walk but after a few steps the room started to spin, everything seemed to go black and my legs went from under me. 

As I lay on the floor I could hear the kids shouting "Mum! Mum! Are you ok mum?" And I lay there in my husbands arms feeling helpless and guilty for what my kids had witnessed yet again. 

I was taken back to bed, had a little bit more time with hubby and the kids and then it was time for them to go. A little while later the weekend doctor came to see me and decided that I'm dehydrated and need IV fluids. 

You see I haven't had any IV fluids since Thursday afternoon. This is the longest period of time I've gone without them since I started having them last year. But after nearly 72 hours my body just couldn't last any longer. 

So I currently hooked up, lying in bed writing this. 


If told the kids to FaceTime me, thinking it would be a good way to keep in touch. So when my phone beeped not long ago I was expecting to say goodnight to the kids. I wasn't expecting to see my Big Fella sobbing and asking when I would be coming home. 

My heart broke into a million pieces as I saw the tears roll down his cheeks, his chest heaving from crying so much. "Mummy I need you. When are you coming home?" he cried. 

And I had to tell him that I didn't know. That I had to speak to Dr7 tomorrow and see what he plans to do. That I don't know if I will be home for his birthday. That I'm sorry. That I hate being in hospital and that I hate being away from him. 

"Mummy. I need a cuddle. I need you!" he cried. And I told him that I had given daddy the power to give mummy cuddles and that Daddy would tuck him in tonight and give him a special mummy cuddle. 

Do you have any idea what's it's like to see that? Do you have any idea what it feels like to hear your child cry like that. And to not be able to reach out and comfort them? To be the cause of their heartbreak? 

Let me tell you. It haunts your every waking minute. It's with you when you close your eyes at night. The guilt overwhelms you and you worry that you are screwing up their childhood. That they will become emotionally disfunctional adults and sit in a therapists chair in 20 years time and blame you. 

And then my phone pinged. It was a message from Big Fella (his are in grey, my replies are in blue)


And then another


What do you say to that???


So I tell him again that I have to talk to Dr7 in the morning and I tell him I love him. 


Really? One word that tells me that my son wonders whether I love him. What child should ever wonder that? 

Maybe facetiming wasn't such a good idea. I think they can cope better with my absence when they don't see me. If they don't see me then it's almost like they forget that I should be there and they just carry on with everyday life. And as much as I find that thought upsetting, I would rather that I get upset than them. 

NB x

Comments

Popular posts from this blog

It’s a full time job having a chronic health condition

Yesterday was a super busy day and today I’m knackered. I had 4 hospital appointments at 3 different hospitals and spent all day either sat in a waiting room or driving between hospitals!!  First off I had an appointment at 9am at the Treatment centre. This was to get my 3 monthly injection that puts me into menopause to control my endometriosis symptoms. Because it was so early I had to be organised the night before and make sure I was connected to my feed early. It runs for 12 hours and I have to factor in the time it takes to disconnect in the morning so I had to be hooked up by 7.30pm at the latest on Wednesday night.  After I had been jabbed in my bottom I went over to QMC hospital to see the specialist nurse on F22, the gastro ward. In January I had a new Hickman line inserted on the right side of my chest and where they removed the old line from the left side I had a wound that took ages to heal. For 6-8 weeks there was green gunk coming out what was basically a hole in...

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...