Skip to main content

Out of my hands

After agonising over whether to go in for the 'Fanny Assessment' on Thursday I called St Marks yesterday and left a message saying that I would go ahead with it.

It hasn't been an easy decision to make and I sought advice from friends and family where opinions were split 50/50. 

In the end I decided to go ahead with it as I thought it was a relatively straightforward procedure and would require an overnight stay at the most. Chances that anything would go wrong were slim and it might just speed things up in terms of the next operation in 2014. 

I hadn't heard anything yesterday so decided to give them a call so I could get some more details and prepare myself to go back in. 

However when the admissions clerk answered she said she was going to call me to tell me that it wouldn't be going ahead on Thursday after all as Surgeon A wanted to do the reversal at the same time (as long as everything looks ok down there) and they didn't have a big enough slot on Thursday. 

That took me back a little bit but I was gobsmacked when she said it was likely to be on the 9th January. She just had to double check with the Surgeon A as she didn't have his diary in front of her. 

After hanging up I just started crying. I'm not sure if was relief that I wouldn't have to go into hospital this close to Christmas, fear of the next operation being weeks, rather than months away or just a release following the last few weeks. 

The only problem was I was in the car in the carpark at Tesco and people were looking. 

My hubby says it means that we can relax and enjoy Christmas but I don't know if I will knowing that the next op is so close now. 

I know it's not as big as the op I had in July but the thought of going under the knife again, the pain involved and the recovery afterwards is quite daunting. 

It's also quite a scary prospect of saying goodbye to my stoma. I've had it for nearly 5 years and had to spend a long time readjusting to life with a stoma. The thought of entering the unknown, having to readjust all over again is not one I'm looking forward to. 

Everyone tells me that this will be the start of a new chapter and I know that this stoma has been nothing but trouble but there is the old saying of 'better the devil you know'. 

I have a million worries about who will look after the kids, how Hubby will cope, if I have lost enough weight, am I well enough, will my line last over Christmas, how I will recover, when I will be well enough to go back to work, how we will manage financially... I could go on and on.  

But the decision has been taken out of my hands and I'm going to try to put it all to the back of my mind and enjoy some family time over the next few weeks. 

NB x

Comments

Popular posts from this blog

Caravan wankers

Over the last few years when I was stuck in hospital for long periods of time Hubby and I would talk about what we would do if I ever got ‘better’. During some of those times when I was so, so poorly the idea of just being at home for more than a few weeks at a time seemed like a far fetched dream. But I’m currently living that dream! And obviously I know I will never ‘get better’ but for these purposes ‘getting better’ meant being well enough to be at home, not in pain 24/7 and not in bed all day, every day. Not too much to ask now is it??  So in our talks, once I was at home and was well enough to do the real basic things like watch Big Fella play football, Big Girl play netball, go to Tesco, play with the dog, go to the cinema etc one thing kept cropping up. We would love to have a motor home and tour round the country. We talked about the places we would like to visit, how much Buddy the dog would love it and how it would give us a chance to reconnect with each other.  But after a

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sleep.

One year anniversary

  Today marks two important milestones: firstly my Hickman line is 1 year old and I have managed to stay out of hospital for a year too! I think this is the first Hickman line I’ve had that has made it to its first birthday, so this is quite a big deal. Most people have their lines in for years and years with no problems but in the past mine have blocked, split or become infected causing me to rack up a grand total of 17 lines in 10 years. But maybe my luck is changing… And the fact I’ve been at home without any inpatient hospital stays for a whole year is a milestone I didn’t think I would see.  2019-2023 was a particularly difficult four years where on average I spent more time in hospital than I did at home. And even when I was at home I was so ill I couldn’t get out of bed. There were some times during that period when I didn’t think I would live to see another Christmas because I was so, so unwell and I couldn’t see how I would ever recover. It was a long, hard slog and there were