Skip to main content

Another Infection

Another line infection!

Another bloody infection!

I can't believe it. 

Just seen Dr 7 in his clinic and he thinks it's almost certain that I have a tunnel infection. Most people get infections at the exit site (the bit where the line comes out of the skin) but he said the symptoms I'm describing sound like the infection is deeper and in the tunnel part (where the line is tunnelled under the chest from the neck). 

This is a lot rarer than an exit site infection- bloody typical that I get it then! It could be due to the fact that I had a lot if scar tissue and it needed to be pushed in more or it could just be one of those things. 

As he put it "there are four options. 
1. Do nothing. Go home to bed and pull the duvet over your head and cry. 
2. Have oral antibiotics. 
3. Have IV antibiotics. 
4. Take the line out and put another in."

We dismissed 1 and 4 as being over dramatic and discussed the merits of 2 and 3. Oral antibiotics are the easier option but will take longer to work. As I'm allergic to 3 antibiotics he is also limited as to what he can prescribe and the one he would have to give me would increase the motions of the bowel meaning that my stoma would probably end up going crazy. 

IV antibiotics would work quicker but have to be given in hospital. So I would have to make a daily trip to St. marks for 10 days or be admitted....

Unless I was willing to learn how to mix and administer the antibiotic at home myself. 

Yep, yep, I can do that I told him. So I went back up to the Intestinal Failure unit to have my first dose and be shown how to do it. Tomorrow I will do it myself on the ward under the watchful eye of the specialist nurse and if she is happy I can then do the other 8 doses myself at home. 

I've also been told on the hush hush that a doctor from my team is on call over Christmas and working Christmas Day so if I get ill I should present at Northwick Park A&E and then I will be seen by the St Marks doctors. Great stuff, but I really hope I don't need to!      

NB x

Comments

Popular posts from this blog

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt.  Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to doo...

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...

The spoon theory

Have you heard of 'The Spoon Theory'? No? Neither had I before I got ill. Why would I have? I didn't spend my time trawling through the internet in search of lotions and potions and pills that might just make me feel a little bit better,  because I was well. I was out living life and having fun.  Don't get me wrong. I'm not saying that I don't have fun any more. I just have less of it, with fewer people and without the aid of alcohol!  The spoon theory was written by Christine Miserandino and she asks that when you reference the theory you add a link to her website, so here it is:  http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I  saw this tonight on Facebook and thought was a brilliant visual to help you understand the 'theory' (and my life) a bit better.  That really is what it's like having a chronic illness. But the trouble is you never know how many spoons you have when you wake up. My  body likes to play trick...