Skip to main content

Another Infection

Another line infection!

Another bloody infection!

I can't believe it. 

Just seen Dr 7 in his clinic and he thinks it's almost certain that I have a tunnel infection. Most people get infections at the exit site (the bit where the line comes out of the skin) but he said the symptoms I'm describing sound like the infection is deeper and in the tunnel part (where the line is tunnelled under the chest from the neck). 

This is a lot rarer than an exit site infection- bloody typical that I get it then! It could be due to the fact that I had a lot if scar tissue and it needed to be pushed in more or it could just be one of those things. 

As he put it "there are four options. 
1. Do nothing. Go home to bed and pull the duvet over your head and cry. 
2. Have oral antibiotics. 
3. Have IV antibiotics. 
4. Take the line out and put another in."

We dismissed 1 and 4 as being over dramatic and discussed the merits of 2 and 3. Oral antibiotics are the easier option but will take longer to work. As I'm allergic to 3 antibiotics he is also limited as to what he can prescribe and the one he would have to give me would increase the motions of the bowel meaning that my stoma would probably end up going crazy. 

IV antibiotics would work quicker but have to be given in hospital. So I would have to make a daily trip to St. marks for 10 days or be admitted....

Unless I was willing to learn how to mix and administer the antibiotic at home myself. 

Yep, yep, I can do that I told him. So I went back up to the Intestinal Failure unit to have my first dose and be shown how to do it. Tomorrow I will do it myself on the ward under the watchful eye of the specialist nurse and if she is happy I can then do the other 8 doses myself at home. 

I've also been told on the hush hush that a doctor from my team is on call over Christmas and working Christmas Day so if I get ill I should present at Northwick Park A&E and then I will be seen by the St Marks doctors. Great stuff, but I really hope I don't need to!      

NB x

Comments

Popular posts from this blog

The germs have got me 🦠

Being on azathioprine, influximab and prednisone is helping to control this recent Crohns flare up. But unfortunately they work by wiping out my immune system making me more susceptible to all the bugs doing the rounds. I refuse to stay at home and be held hostage by these meds though- for me they are there to give me my life back, not to make me a prisoner in my own house, so the inevitable has happened and I’ve got a cold.  ‘It’s only a cold’ you might think, but with no immune system to fight it off this cold has made me pretty poorly. Yesterday I couldn’t get out of bed and felt so, so ill. I was coughing and struggling to breathe so I’m pretty sure I’ve got a chest infection too. But I can’t confirm that because apparently even being immunocompromised with a suspected chest infection is not enough to see a GP these days!  I spoke to the receptionist at the GP surgery this morning who told me that all the urgent appointments for today were gone (and this was at 8.25am, aft...

It’s a full time job having a chronic health condition

Yesterday was a super busy day and today I’m knackered. I had 4 hospital appointments at 3 different hospitals and spent all day either sat in a waiting room or driving between hospitals!!  First off I had an appointment at 9am at the Treatment centre. This was to get my 3 monthly injection that puts me into menopause to control my endometriosis symptoms. Because it was so early I had to be organised the night before and make sure I was connected to my feed early. It runs for 12 hours and I have to factor in the time it takes to disconnect in the morning so I had to be hooked up by 7.30pm at the latest on Wednesday night.  After I had been jabbed in my bottom I went over to QMC hospital to see the specialist nurse on F22, the gastro ward. In January I had a new Hickman line inserted on the right side of my chest and where they removed the old line from the left side I had a wound that took ages to heal. For 6-8 weeks there was green gunk coming out what was basically a hole in...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...