Skip to main content

What happened next?

After the complications at the start of the week you're probably wondering what has happened since?

Well on the whole it's good news. The pain I was experiencing has greatly reduced and I'm off the PCA and just having oral morphine if required. The surgical doctors are happy there hasn't been a leak otherwise I would be very poorly by now and would have definitely required surgery. 

I'm more mobile and getting about is less painful although I'm still shuffling about like an old lady. But more like an old lady on pension day, you know- has a slight skip to the shuffle. 

I'm still not really able to eat or drink anything. I'm allowed but every time I do then I get terrible tummy pains. The Stoma nurse has said that this is quite normal but because I haven't had anything proper to eat in over a week the nutrition doctors had now put me on TPN (total parental nutrition). 


Basically they are feeding me through my Hickman line 1400 calories a day. This is ok but it means that you are hooked up to a drip for 20 hours a day so there's only a small window of opportunity to have a shower etc. 

You're probably wondering why I'm still seeing a Stoma nurse when I don't have a Stoma anymore. At St Marks the Stoma nurses have specialisms so they may be a general Stoma nurse or in this case my nurse is a stoma nurse who specialises in stomas and pouches. She only looks after patients that have a Stoma because they are, or will be having, a pouch at some point in the future or have had their Stoma removed after having pouches formed. 

There was a little hiccup on Wednesday when the medical doctors came and told me that the report from the CT scan showed that I had got a leak and there was evidence of gas bubbles in the abdomen. They weren't happy with the antibiotics that the surgical team had prescribed and felt that I should have some different ones to ensure that any infection was going to be gone completely. I couldn't understand why the surgical team had told me there was no leak when another set of doctors where standing there telling me that there was. Sometimes it can be very confusing being under two different teams and you can feel like piggy in the middle.

The surgical doctor, Mr Aziz, came to see me Wednesday night on his way home and explained that he was confident that they had 'done the right thing' every step of the way and that there was no leak. He came again on Thursday morning as he had received a text from his junior saying they thought I was confused about why there was a difference of opinion. 

He explained that on Monday he saw me all day and saw the whole picture but that the medical team only saw a snapshot and read the report from the CT scan. The scan did show some gas bubbles but these were indicative of having just had surgery and were not considered a worry. He said that the scan did show a collection that could have been a leak and on Monday that was what it was pointing towards, however as I've improved it may just be some fluid left over from surgery and I'm obviously none the worse for it. Again he kept telling me he was confident that they had done the right thing every step of the way- something that I don't question at all.

The surgical doctors and the Surgeon A have been to see me today and have said that they're happy with my progress and how the wound is healing (even though they didn't look at it!) and they are now going to hand my care over to the medical team. It's now up to them to try and get me better and get me home.

Today has actually been quite a good day. I've managed to paint my toenails and washed my hair with my Mums assistance. I also bumped into a lady in the hospital Costa that I made friends with the last time I was in St Marks in the summer and we had a quick catch up with the promise of meeting up when we are both better. 

I feel that I have turned a corner. Yesterday I was feeling a bit sorry for myself and was thinking that I would begin hospital until February but I've decided that although I can't control my body I can control my mind. If I think positively then that can only help my body to heal. Good thoughts make good things happen inside, well that's what I think anyway. 




So I'm determined to think of all the blessings I have, how well things are going now and all of the things that I will do when I get of here and get a life back.

I was on the phone to a very good friend this afternoon and we were talking about summer holidays and the things that there are to forward to. Picnics and bike rides in the country park, feeding the ducks, spending days at the beach building sandcastles, music concerts, maybe even a skydive? 




So here's to 2014- watch out because when I get out of here I am coming to get you! That's a promise.

NB x

Comments

Popular posts from this blog

New car smell

After everything that’s happened over the last 5 weeks not many days have been good days but today was. I will write a blog post about everything that happened but that’s for another day!  Today I went to pick up my new motability car and got to breathe in that new car smell. I am now the proud lease holder of this lovely Volvo XC40.  To be honest, part of me wasn’t sure whether to write a blog post about getting the new car with everything that’s been going on with the disability benefit reforms. There’s been so much written about motability cars on social media but a lot of it is misinformation and hate and that made me nervous to write this post. But I figured that most people reading it are friends and family and understand my need for the car. But for those that don’t let me explain a bit about how the motability scheme works.  I am lucky enough (or unlucky enough depending on how you look at it) to claim PIP- personal independence payment. This benefit is designed t...

The germs have got me 🦠

Being on azathioprine, influximab and prednisone is helping to control this recent Crohns flare up. But unfortunately they work by wiping out my immune system making me more susceptible to all the bugs doing the rounds. I refuse to stay at home and be held hostage by these meds though- for me they are there to give me my life back, not to make me a prisoner in my own house, so the inevitable has happened and I’ve got a cold.  ‘It’s only a cold’ you might think, but with no immune system to fight it off this cold has made me pretty poorly. Yesterday I couldn’t get out of bed and felt so, so ill. I was coughing and struggling to breathe so I’m pretty sure I’ve got a chest infection too. But I can’t confirm that because apparently even being immunocompromised with a suspected chest infection is not enough to see a GP these days!  I spoke to the receptionist at the GP surgery this morning who told me that all the urgent appointments for today were gone (and this was at 8.25am, aft...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...