Skip to main content

It's on, it's off, it's on again

Having spoken with the admissions clerk at St Marks before Christmas I was told that the 'Fanny Assessment' and stoma removal or takedown would happen on the same day to avoid me having 2 general anaesthetics. 

I was told that this would take place on the 9th January but then hadn't heard anything so I rang them yesterday. 

The lady I spoke to told me that actually the 9th might not go ahead now as although they had the theatre time they weren't sure if they had the right surgical team available to support Surgeon A in the procedure. 

When I got off the phone I wanted to cry. I had spent all of Christmas getting my head around the fact that I would be having the operation in early January and not March time as they told me at my outpatient appointment. And now it might not happen. 

If it didn't happen what would I do? I can't just sit around the house watching Jeremy Kyle and doing craft things, I would need to go back to work. 

You see I am employed but currently not receiving any pay from my employer. I need to try and claim Employment Support Allowance benefit but to be honest that requires a whole post of it's own!

The idea of going back to work is a scary one. I have been off since June 2013 and the thought of having to get up, get dressed and go into the office and actually have professional conversations is something I find quite daunting. 

So now I'm thinking about going back to work and how I will juggle my medications, TPN, stoma and everything else medical not only at work but in the mornings to make sure I actually get there on time. 

My friend was round with her kids and kids are a great distraction. The world could be coming to an end and they would still be asking if it's time for lunch yet. 

Talking with my friend over lunch we decided that 'what will be, will be' and if it was meant to happen on the 9th then it would and there was no point stressing over it. 

This is a huge breakthrough for me as over the last few years I would have been ranting and raving, flapping and stressing and generally giving myself a headache. Learning to accept that there are things you can't control in life and these things shouldn't have energy wasted on them has made my life much happier and calmer. 



But then yesterday afternoon I got a call from St Marks to say that a team had been put together and it was go, go, go for the 9th. 

My head was all over the place. First it was January, then probably March, now definitely January. No going back to work for now. No getting suited and booted. But this meant an operation in a weeks time. 

Now I felt sick. It is actually happening. Bloody hell. 

Now I knew I had only 1 week to get my house in order. Literally and figuratively speaking. And off my mind goes.

I need to clean. I need to change beds. I need to do laundry and ironing. I need to plan meals and do food shopping. I need to pack. I need get waxed. 

Stop! 

No. All of things don't need to be done. It would be good to do them but what I need to do is hug my children. Tell my husband I love him. Have a night out with friends to talk about something other than stomas and hospitals. 

So that's what I will be doing. 

Starting with a date night to the cinema with my husband. 

NB x


Comments

Popular posts from this blog

It’s a full time job having a chronic health condition

Yesterday was a super busy day and today I’m knackered. I had 4 hospital appointments at 3 different hospitals and spent all day either sat in a waiting room or driving between hospitals!!  First off I had an appointment at 9am at the Treatment centre. This was to get my 3 monthly injection that puts me into menopause to control my endometriosis symptoms. Because it was so early I had to be organised the night before and make sure I was connected to my feed early. It runs for 12 hours and I have to factor in the time it takes to disconnect in the morning so I had to be hooked up by 7.30pm at the latest on Wednesday night.  After I had been jabbed in my bottom I went over to QMC hospital to see the specialist nurse on F22, the gastro ward. In January I had a new Hickman line inserted on the right side of my chest and where they removed the old line from the left side I had a wound that took ages to heal. For 6-8 weeks there was green gunk coming out what was basically a hole in...

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...