Skip to main content

Be grateful for today

Hospitals really do see the full life cycle. Most people are born in a hospital and quite a few people die here too. Having been in and out of hospitals I have seen many occasion the curtains being drawn only for the porters from the mortuary to come up with the coffin trolley. 

Today on the ward one of the patients got married. He's only 33 and had bowel cancer and has weeks to live. 

The wedding had been planned for April but it was his one wish to get married before he died. He was so ill he couldn't even make it down to the chapel in the hospital and instead had it in the meeting room just outside the ward. 

There were 8 bridesmaids all wearing a gorgeous coral coloured dress and the bride looked gorgeous as she walked down the aisle of the ward. 

It really makes you think about how short and fragile life is. And how lucky we are...there is always, always someone worse off than you. 

I thought my wedding vows were emotional given that they were taken just weeks after my operation and stay in intensive care in 2009 but I can only imagine what the 'in sickness and in health, til death do us part' must have been like for them to say today. 

I'm glad they got to have their special day and hopefully the memories of the wedding day will be happy one. 

NB x


****Just been talking to the grooms sister in the dayroom. He only decided at 9pm last night he wanted to get married. They got the bridesmaid dresses from a 24 hour Asda, going all round London to get the right sizes, got the boquet of flowers made at the florist this morning and the bride went to the registry place at 9am this morning to sort it out. It wasn't until 11am that they knew it was definitely going ahead at 1pm! The sister said the nurses did the room up lovely for them and that it was such a beautiful wedding and they are utterly besotted with each other which just makes it seem even crueler. I had to excuse myself because I was about to start crying. 


Comments

Popular posts from this blog

The germs have got me 🦠

Being on azathioprine, influximab and prednisone is helping to control this recent Crohns flare up. But unfortunately they work by wiping out my immune system making me more susceptible to all the bugs doing the rounds. I refuse to stay at home and be held hostage by these meds though- for me they are there to give me my life back, not to make me a prisoner in my own house, so the inevitable has happened and I’ve got a cold.  ‘It’s only a cold’ you might think, but with no immune system to fight it off this cold has made me pretty poorly. Yesterday I couldn’t get out of bed and felt so, so ill. I was coughing and struggling to breathe so I’m pretty sure I’ve got a chest infection too. But I can’t confirm that because apparently even being immunocompromised with a suspected chest infection is not enough to see a GP these days!  I spoke to the receptionist at the GP surgery this morning who told me that all the urgent appointments for today were gone (and this was at 8.25am, aft...

It’s a full time job having a chronic health condition

Yesterday was a super busy day and today I’m knackered. I had 4 hospital appointments at 3 different hospitals and spent all day either sat in a waiting room or driving between hospitals!!  First off I had an appointment at 9am at the Treatment centre. This was to get my 3 monthly injection that puts me into menopause to control my endometriosis symptoms. Because it was so early I had to be organised the night before and make sure I was connected to my feed early. It runs for 12 hours and I have to factor in the time it takes to disconnect in the morning so I had to be hooked up by 7.30pm at the latest on Wednesday night.  After I had been jabbed in my bottom I went over to QMC hospital to see the specialist nurse on F22, the gastro ward. In January I had a new Hickman line inserted on the right side of my chest and where they removed the old line from the left side I had a wound that took ages to heal. For 6-8 weeks there was green gunk coming out what was basically a hole in...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...