Skip to main content

The night before

It's the night before my op. Tomorrow Surgeon A will do the 'Fanny Assessment' and I may or may not wake up without my stoma.

It's very strange to think that at some stage tomorrow they will be putting me to sleep and I won't know what they've actually done to me until I wake up. 

Will my stoma still be there? If it was I don't think I would actually be too sad. At least I know what I'm doing with it. Although that would mean there was a problem 'down there' that would probably requiring sorting out so not necessarily that appealing. 

I could wake up without it, in which case tonight was the last time I will change my bag and look down at my belly and see some of my bowel sticking out. To think that it will all be inside like other people is quite strange. 

In a way I feel quite sad. Although this stoma has been nothing but bloody trouble from the beginning without it I wouldn't be here. It literally saved my life. And I feel strangely attached to it. 

I've always said that my stoma doesn't define me- I've called my blog 'more than just a bag lady' for heavens sake because I want people to realise I am more than just someone with a stoma bag but actually it kind of does shape your whole life. 

For almost the last 5 years my stoma has determined what I can eat and drink, what clothes I wear (including underwear- I can't remember the last time I didn't wear big Bridget Jones style knickers!), where we've gone on holiday (or not as the case may be), whether I've been able to work, the medication I've needed, even my handbags as I've always needed one big enough to carry spare stoma supplies with me. 

It has influenced so many parts of my life and to think that it won't be there doing that is almost unbelievable. And a little bit scary. Better the devil you know eh?

I think that the frightening part is the not knowing. I have to put my complete faith and trust into Surgeon A tomorrow and know that whatever I wake up to is because he thinks that's the best and safest option for me. 

To be honest all I want is to live a normal life, without the pain I've been in and see my children grow up. Whether that's with a bag or not, well I really don't care. 


Comments

  1. Will be thinking of you tomorrow Nat. Good luck. You can do this :) xxx

    ReplyDelete

Post a Comment

Popular posts from this blog

Caravan wankers

Over the last few years when I was stuck in hospital for long periods of time Hubby and I would talk about what we would do if I ever got ‘better’. During some of those times when I was so, so poorly the idea of just being at home for more than a few weeks at a time seemed like a far fetched dream. But I’m currently living that dream! And obviously I know I will never ‘get better’ but for these purposes ‘getting better’ meant being well enough to be at home, not in pain 24/7 and not in bed all day, every day. Not too much to ask now is it??  So in our talks, once I was at home and was well enough to do the real basic things like watch Big Fella play football, Big Girl play netball, go to Tesco, play with the dog, go to the cinema etc one thing kept cropping up. We would love to have a motor home and tour round the country. We talked about the places we would like to visit, how much Buddy the dog would love it and how it would give us a chance to reconnect with each other.  But...

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sl...

Trying to get vaccinated

When I was an inpatient recently I asked about getting the Covid vaccine because I’m classed as Clinically Extremely Vulnerable (ECV). Apparently other patients on the ward had gotten theirs but I was told that it wouldn’t be possible and that I would have to get in touch with my GP. Apparently staff within the hospital had been using the system to book vaccinations for friends and family by saying that they were an inpatient and as a result they were now only vaccinating staff who could show their ID badge.  I can understand that people are worried about the people that they love but to think that people abused the system in that way makes my blood boil.  So when I was discharged I rang the GP surgery and was told that they had absolutely nothing to do with the vaccination programme and that I would need to get in touch with NHS England. So I called NHS England and spoke to an adviser who told me that according to the system I wasn’t eligible for a vaccination. I explain...