Skip to main content

Saturdays swede

I didn't have a good night last night. I went to sleep around 12 and was awake at 1am, 3am,5am and 6am. I then pulled the sheets over my head to block out the sunrise and managed to get another 2 hours. 

Each of those times I had to make a dash for the toilet. Not easy when you're attached to a drip stand with 2 drips and the pump on the drip stand is plugged into the wall so the battery can charge. There was a tangle of wires everytime I got up and a few times I nearly wet myself trying to make it to the loo without choking myself or pulling out a cannula. 

I'm not sure if it was the chocolate muller-rice I had last night that was causing the night time dashes. I had been craving chocolate and the lady opposite offered me some of her maltesers and choc biscuits. I declined knowing that it would give me terrible tummy ache but I told her that if in an hour I was still craving she was to give me one malteser and no more! But I remembered that I had some chocolate muller-rice and I thought that as I can tolerate muller-rice then I might be able to tolerate it with a bit of chocolate. I was wrong. Oh well. If I don't try these things then I will never know. 

I was disappointed when they delivered breakfast this morning as the kitchen had run out of quorn sausages. I had to settle for an extra hash brown instead. To make it easier on my tummy I have to chop up the hash brown and scrambled egg and I find that mixing it with ketchup makes it easier to stomach. I know it sounds pretty disgusting but I enjoy it. 



After breakfast I was going to do some cross stitching but couldn't focus on it. I then started to read a magazine but was too restless. I was going to faff about online but I thought I had better check how much 3G allowance I had left. 

Aaaarrrrggghhhh!!!!!!!

I have nearly used the whole of March's allowance in 6 days. Bugger. I'm now going to have to limit my Internet usage and communicate via text as I have no limit on the amount of those I can send. I will have to go Facebook cold turkey. I have been meaning to sort out my phone contract for some time now but the last couple of weeks I've been focusing on my application for ESA and hadn't gotten around to it.

I asked my Bestie to send through some details from an online comparison site but I am so confused about the diffetence between the iPhone 5c and 5s (other than the colour) and the difference between 3G and 4G. I'm blaming it on the meds because since they increased them the last time I feel like my brain is a bit cotton wooly and the link from brain to mouth is failing me, resulting in unfinished sentences and jumbled up words. If any of my readers can explain these differences to me I would be ever so grateful. But try and explain it the way you would explain it to your 80 year Nanna as that's probably the level my brain is operating at the moment!

Around 11.30 the pain in my tummy came on suddenly; I thought I was going to throw up. I got back into bed and buzzed for pain relief. While I was waiting the lovely lady opposite me filled my hot water bottle up for me and I tucked it under my pjs so the heat would be directly on my body. I got my meds about 12. Because it is a controlled drug 2 nurses must check it and administer it. On a weekend there are less nurses so you sometimes have to wait longer than you would in the week. 

Lying in bed I read Take a Break to take my mind off my tummy. Stories this week included 'Our little boy asked me for a womb', 'She wed my son, then took my hubby' and 'Mum, please help me to die'. All the usual cheery stuff. I wish they did a subscription to TAB as it's my favourite magazine. Reading it makes me think that my life's not so bad...I haven't made it into TAB or onto Jeremy Kyle so I know I'm doing ok for now!

I was in a lot of pain and counting down the minutes until I could have more pain relief when I got a lovely surprise. In walked my Dad. I didn't think he would be coming to visit today as I knew he was driving home to Nottingham to get home in time to have dinner with Mum. 

It was a lovely surprise and he sat by the bed and held my hand. My Dad is very sociable and will chat with anyone so he chatted away with the Sister, the nurses and the lady opposite while I lay in bed nursing my hot water bottle. Somehow the topic of engagements came up and he told the lady opposite how he proposed to Mum. I was surprised that I had never heard the story myself and enjoyed listening to him telling it. Soon we were all swoping stories and laughing which took my mind off the pain. 

Finally the time came for me to have some more pain relief so while the nurses prepared it I walked arm in arm with Dad to the dayroom to refill my hot water bottle. Before getting into bed I stood and had a massive cuddle with him. When he wraps his arms around me I feel like a little girl again. He makes me feel safe and loved and I didn't want him to let me go. But he had to so he tucked me up in bed, gave me a kiss and off he went. 

I wish the M1 were shorter and Nottingham was closer. 

I wish I had won the €80 million jackpot on the Euronillions so that we didn't have to live so far away from our families but so that we also had enough money to have a house in the area we currently live and a driver so that we could pop down and still see our friends. 

But I didn't so for now I had to watch him leave not knowing when I would be well enough to travel to Nottingham or when him and Mum would next be able to come and visit. 

The painkillers kicked in and the tiredness washed over me so I slept for a few hours only being woken up by the nurse for supper. The pain had lessened by then and I enjoyed my Mash and gravy. But, wait for it, I mushed a little bit of swede in with the potato. I had to laugh when they brought my supper- did I want mash with my swede??


Don't worry, I didn't eat all that swede. Could you imagine the pain I would be in if I did?!

Sister needed to try and cannulate me tonight as the one that was there had been in for 4 days (tut, tut- they're only supposed to be in for a max of 72 hours).
She couldn't find a vein- no surprise there. I wanted to have a shower so when I mentioned this to her she said my veins would show better after having been in a hot shower but I had to have a quick one she said as it was near the end of her shift. 

I went in and out of the shower super speedily. This is something that I still love- being able to jump in the shower and not have to deal with the Stoma bags afterwards. I don't think it will ever lose its novelty. 

Sister is the Queen of cannulas and even on me she managed to get one in, first time. So now I'm hooked up to my IV fluids, about to finish my TAB magazine and hoping to get a better nights sleep than last night. 

NB x



Comments

Popular posts from this blog

Light at the end of tunnel

I’m sat writing this blog post in St Marks, the specialist bowel hospital in London. So much has happened in the last few weeks; it’s all been a bit of a whirlwind. But I finally feel like there is some hope at the end of the tunnel. Let me tell you why.  At the beginning of June I was admitted yet again to QMC in Nottingham with huge amounts of pain, my bowels not working properly and just feeling generally unwell. I had only been home a couple of weeks since the admission in May but I had been feeling so rubbish most of my time had been spent in bed. I had tried everything I could to stay at home but the pain had become so bad I was barely able to stand or take a few steps on my own.  I had expected to maybe be in for a week or two to get stronger pain meds and get back on my feet but I ended up being in for almost a month. They put me on morphine injections and ketamine but then stopped them when my heart rate dropped to 30 beats per minute and my breathing to 7 breaths a minute. Th

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sleep.

The wrong size line

I’m on the M1 heading back to Nottingham after a road trip to St Marks to get my line repaired. But this is me, and as usual it wasn’t a smooth ride. More like a bloody shit show. So what happened? Let me tell you… After being admitted to QMC in Nottingham on Sunday with a broken Hickman line I was taken down to Interventional Radiology on Monday afternoon to get my line repaired. Firstly, I couldn’t believe it was happening so quickly and secondly I didn’t want to get too excited because, well it’s me, and usually things don’t go according to plan. And sadly I right to rein in the excitement.  When the doctor came to consent me for the procedure it was for a replacement, not a repair. I assumed he had made a mistake so I told him I was there to get my line repaired and was definitely not there for a new one. He looked at me and said “I hate to be the bearer of bad news…” and that’s a sentence that never bodes well. He then went on to say that they didn’t have any repair kits and that