Skip to main content

Mothering Sunday

I had been looking forward to Mothers Day, not for the usual lie in or breakfast in bed but because it was the one day of the week that I got to see Hubby and the kids. 

Hubby had told me that they would be coming early, around 10am but then on Sunday morning I got a message from Big Fella saying that Hubby had forgotten to put the clocks forward so they would aim to get to the hospital for 11am instead. 

Fancying some toast, me, Sue and Sarah (from side room 6) went down to the restaurant and met my friend who is on Fredrick Salmon ward. We had a little browse through the M&S mans wares and then did our walk. 

As we were going round we got to our bench and couldn't believe it when we found that it had been replaced with a new one!


It was such a monumentous occasion that we decided to take a selfie of the 3 of us on the new bench. 

 
Nearing the end of the walk Hubby text to say they had arrived so I made my way back up to the ward. Sitting on my bed were Big Girl and Big Fella and Hubby. Seeing them all I rushed in to have kisses and cuddles. 

I was very lucky to get cards both shop bought and home made and some lovely gifts that the children proudly told me that they had chosen themselves. I suggested to Hubby that we went out for a few hours but he thought that we were going to stay on the ward. I was desperate to get out of the hospital though and persuaded him to make a trip to Ruislip lido. 

I don't think he really wanted to go because he looked exhausted but he begrudgingly agreed so we set off (after I put some clothes on of course. I didn't go out in my pjs!)

Another patient had told me about Ruislip lido and it was lovely. It's a lake with a man made beach, park for the kids, a miniature train running around the perimeter of the lake and a cafe. It even had free car parking! 

The kids were excited to go on the train so we did that first. It took about 15 minutes to get to the beach where we let the kids have a play then took the return journey back. While the kids were playing Hubby admitted that he was worn out and that the kids had been particularly difficult the night before. Big Girl especially has been quite challenging but I think she finds it very hard when I'm in hospital, more than Big Fella does. If you think about it I've spent 7 of the last 9 months in hospital on and off so it has affected the kids and the family as a whole quite considerably. 

Hubby had packed a picnic so we sat and had that before feeding the ducks, riding scooters and getting ice creams. After a couple of hours I was completely exhausted so told Hubby that I needed to head back to the hospital. Before going back I decided that they needed to have a bit of a car cleaning session as it had turned into a bit of a mess over the last few weeks. After Hubby and the kids had filled 3 carrier bags of rubbish we set off. 

On the way back I got a text from Sue to say that she had been discharged and was on the way home. She wasn't supposed to go until tomorrow so I couldn't believe that she had managed to get discharged at the weekend. I was gutted that I hadn't been able to say goodbye and felt that the ward wouldn't be the same without her. 

We arrived back just in time to go to mass and the kids decided that they wanted to sit on the front row. We were close enough to touch the priest as he talked but Father Augustin is lovely and doesn't bat an eyelid if the kids get a bit restless and even waited to start the mass while me and the kids lit candles. 

It was then time for them to go home and I was so sad. Big Girl asked when I would be coming home and although I was feeling better I still didn't know. I told her that I had to see Dr7 in the morning and see what he had to say. Hopefully it would be at some point in the next week fingers crossed. 

I hate saying goodbye and usually walk to the lifts with them but after being out for the afternoon I was too worn out so had kisses and cuddles by the bed. The kids ran off to press the button for the lift while I said goodbye to Hubby. 

I feel guilty knowing that he is struggling at home with the kids and working and keeping everything going at home and also helpless because I'm stuck in hospital unable to do anything to help him. I just desperately want to go home and for us to be a normal family again without the threat of another hospital admission hanging over us. 

NB x


Comments

Popular posts from this blog

It’s a full time job having a chronic health condition

Yesterday was a super busy day and today I’m knackered. I had 4 hospital appointments at 3 different hospitals and spent all day either sat in a waiting room or driving between hospitals!!  First off I had an appointment at 9am at the Treatment centre. This was to get my 3 monthly injection that puts me into menopause to control my endometriosis symptoms. Because it was so early I had to be organised the night before and make sure I was connected to my feed early. It runs for 12 hours and I have to factor in the time it takes to disconnect in the morning so I had to be hooked up by 7.30pm at the latest on Wednesday night.  After I had been jabbed in my bottom I went over to QMC hospital to see the specialist nurse on F22, the gastro ward. In January I had a new Hickman line inserted on the right side of my chest and where they removed the old line from the left side I had a wound that took ages to heal. For 6-8 weeks there was green gunk coming out what was basically a hole in...

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...