Skip to main content

The weekend

I had a lovely weekend. On Saturday my bestie came to visit with her Hubby and kids. He did homework with the kids for an hour while we had our time chatting and catching up. I had bought her a top from the M&S man who had a stall in Costa earlier in the week as a thank you for having my kids so often. Because he was there all weekend we decided to take a walk down and have a look at what he was selling. 

We've nicknamed him the M&S man as he has lots of M&S clothes for sale, plus stuff from Tesco, Next and places like that. It's all really cheap- tops £3, jeans £5, jumpers £5 and some of the stuff even has its labels still on. He had a gorgeous men's winter coat from M&S with the label on of £159. He was selling it for £25!! I was going to get one for Hubby but they didn't have his size. Always the way. 

Kitty had gotten the kids some arts and crafts sets so we took the monster puppets set to the dayroom and the kids did that while we chatted some more. It was soon time for them to go and I hate saying goodbye. 

On Sunday morning I was going to the shops to get some treats ready for when Hubby and the kids came and I stopped in to ask the lady in side room 6 if she needed anything. She's not well and not able to walk on her own so we will often ask if she wants anything when we're passing on the way downstairs. 

She said she didn't know if she wanted anything because she had never been down to the shop and that got me thinking. There was a wheelchair on the ward so I thought it would be nice to put her in the wheelchair and take her for a ride. 

Sue and Di were going to come too so we put the lady from side room 6 into the chair and walked to the lifts. She said she hadn't been out for so long so I asked if she wanted to go outside on our walk with us. 

She did so I went back to get my dressing gown and to fetch a blanket to keep her legs warm in the chair. We went out of St Marks entrance as normal and her face lit up just to be out in the fresh air. She was so excited to be out and I was so pleased to be able to do that for her. We walked around the perimeter of the hospital, stopping for a break at our bench and then came inside through the Northwick park front entrance. 

We stopped to look at the M&S man and the lady from side room 6 was able to get a few bits for her husband. In WH Smiths she found that they sold Worchester sauce flavour crisps so got some of those for her hubby too. We wheeled her up and down each aisle and she loved browsing and just being off the ward. It makes you realise that these simple pleasures can mean so much when you can't just do them whenever you choose. She was so grateful and kept thanking us but really the pleasure was ours; seeing her face that morning when we wheeled her outside for the first time in months will stay with me for a long time. 

We got back to the ward and I knew it wouldn't be long until Hubby and the kids arrived. I was literally counting down the minutes. To say I was excited to see them was an understatement. I soon hear the familiar patter of feet and I ran towards them, my arms outstretched. "Mummy" they both shouted. We hugged and then they saw the things I had laid out on the chair. 

There were the arts and crafts kits from Kitty and also an Easter bonnet kit each that my Mum had got for me to give them. Big Girl also had some hair clips and bands that I had got from one of the stalls in Costa in the week and I had managed to get Big Fella the Teenage Mutant Ninja Turtle sticker book that I had been promising him. I like to treat them to little things, I suppose because I feel guilty about being away from them all week.     

We sat in the day room making things, going homework and playing games. It was bliss! It felt like we were a normal family spending a Sunday afternoon together. 

We went to the hospital restaurant for lunch but after being there for a short while I started to get bad pains in my bottom. I closed my eyes and tried doing some deep breathing but I knew that these were not going to pass. I told Hubby that I needed to go back to the ward to get some pain relief and left them to finish their lunch. 

I struggled along the corridor and made it to the lifts. One of the men from A bay was in the lift with me and he knew that I wasn't great so went to fetch a nurse once we got to the 9th floor. The nurses bustled around getting injections and entinox for me and I got into bed. 

I couldn't believe I was having an episode while Hubby and the kids were visiting. I get 4 hours a week with them and this bloody pain was going to rob me of some of that precious time. I was so mad. It just seemed so unfair. If it was going to happen why couldn't it have waited for just another hour, for them to go home? Why did it have to come on while they were there. Aaaaaarrrgggghhhh! I could just scream!

Knowing that getting all angry and worked up would only make things worse I started to do big deep breaths and tried to relax. It's a good job because Hubby and the kids were back on the ward. I asked Hubby to make me a hot water bottle as I find it helps with the pain to sit on one. The kids kicked off their shoes and climbed into bed with me. 

"What's that Mum?" they asked, pointing at the Entinox. "It's Mums medicine." Hubby told them. "Sometimes when her bottom hurts her she has to have this medicine instead of a tablet or an injection." "Ok" they replied, seemingly unfased by it all. 

Soon it was time for them to go and the pain had subsided enough for me to get up and go to mass. My Irish friend had come to the hospital with her husband to meet me and after mass we went to the restaurant for a catch up over a cup of tea. I like chatting with them both; they're easy to talk to and very good people with hearts of gold. 

After such a busy weekend I got into bed that evening and fell asleep holding my book. It's just a shame that the weekends have to go so quickly and never seem long enough. I suppose some things don't change whether you're in hospital or out in the real world. 

NB x

Comments

Popular posts from this blog

Caravan wankers

Over the last few years when I was stuck in hospital for long periods of time Hubby and I would talk about what we would do if I ever got ‘better’. During some of those times when I was so, so poorly the idea of just being at home for more than a few weeks at a time seemed like a far fetched dream. But I’m currently living that dream! And obviously I know I will never ‘get better’ but for these purposes ‘getting better’ meant being well enough to be at home, not in pain 24/7 and not in bed all day, every day. Not too much to ask now is it??  So in our talks, once I was at home and was well enough to do the real basic things like watch Big Fella play football, Big Girl play netball, go to Tesco, play with the dog, go to the cinema etc one thing kept cropping up. We would love to have a motor home and tour round the country. We talked about the places we would like to visit, how much Buddy the dog would love it and how it would give us a chance to reconnect with each other.  But...

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sl...

Trying to get vaccinated

When I was an inpatient recently I asked about getting the Covid vaccine because I’m classed as Clinically Extremely Vulnerable (ECV). Apparently other patients on the ward had gotten theirs but I was told that it wouldn’t be possible and that I would have to get in touch with my GP. Apparently staff within the hospital had been using the system to book vaccinations for friends and family by saying that they were an inpatient and as a result they were now only vaccinating staff who could show their ID badge.  I can understand that people are worried about the people that they love but to think that people abused the system in that way makes my blood boil.  So when I was discharged I rang the GP surgery and was told that they had absolutely nothing to do with the vaccination programme and that I would need to get in touch with NHS England. So I called NHS England and spoke to an adviser who told me that according to the system I wasn’t eligible for a vaccination. I explain...