Skip to main content

I've heard it all now!

I was talking to the pouch nurse today about how to know whether my pouch had emptied completely. 

I told her that sometimes it feels like there's more in there but I don't know if there is or how to get it out. 

She suggested standing and then sitting down again and leaning back while on the loo as position can affect how well the pouch empties. 

She said if after a few weeks it still felt like it wasn't totally emptying then you can have a 'defacating pouchagram'. The puzzled look on my face meant that I needed this explaining to me although I immediately wished she hadn't. 

In a normal pouchagram they put a catheter into your pouch (via your bum), insert a liquid and then take X-rays. The liquid shows up on the X-ray and can highlight any leaks in the pouch etc. 

A defacating pouchagram is where they insert a paste instead of a liquid then ask you to go behind a screen and take X-rays while you do a poo!! The idea is to see how much comes out and how much stays in. 

Can you imagine actually having to do this? Now I've had a lot of tests, operations and examinations involving my bottom end (plus I've had 2 babies) so I tend not to be too shy about such matters but the thought of this even shocked me. 

They would have to just put a sign on the door as you went in...


Fingers crossed I won't require this particular test, although knowing my luck there will probably be a blog post telling you all about it in a few weeks 😉

NB x

Comments

Popular posts from this blog

It’s a full time job having a chronic health condition

Yesterday was a super busy day and today I’m knackered. I had 4 hospital appointments at 3 different hospitals and spent all day either sat in a waiting room or driving between hospitals!!  First off I had an appointment at 9am at the Treatment centre. This was to get my 3 monthly injection that puts me into menopause to control my endometriosis symptoms. Because it was so early I had to be organised the night before and make sure I was connected to my feed early. It runs for 12 hours and I have to factor in the time it takes to disconnect in the morning so I had to be hooked up by 7.30pm at the latest on Wednesday night.  After I had been jabbed in my bottom I went over to QMC hospital to see the specialist nurse on F22, the gastro ward. In January I had a new Hickman line inserted on the right side of my chest and where they removed the old line from the left side I had a wound that took ages to heal. For 6-8 weeks there was green gunk coming out what was basically a hole in...

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...