Skip to main content

Yummy, yummy in my tummy

So after 5 days here is the first food that's passed my lips. 


It was the microwave white rice you get in packets in the supermarket and after eating nothing at all for so long it felt horribly greasy and unpalatable. I ate about 1/5th because I didn't want to go from famine to feast and overload my stomach and bowels. It didn't cause me any real problems although I could feel my bowels waking up and working a little while after eating it. I suppose the next step is to eat a little bit more and see how I manage that. 

I've been onto St Marks today to try and get another appointment with my consultant down there. The more I think about it the more uncomfortable I am about transferring my care to Nottingham to a doctor that I have absolutely no faith in or respect for, especially when the team at St Marks are so amazing. I know that logistically it's going to be difficult but in my heart of hearts I'm sure that this is the right decision. I think I need to get a little bit better about asking for help rather than thinking that I will be fine just jumping on the train and going down there myself. My sister has said that she will take me if Hubby or Dad can't so I think I'm just gonna suck it up and do the journey even if I'm feeling as rough as a badgers arse on the day of the appointment. 

In other news, I had my last antibiotic dose 🎉🎉🎉🎉🎉🎉 and since then I've started to feel a bit more human. The dose that they give you in hospital to fight these bugs is like a super super strength one and I think antibiotics always make you feel a bit crap because they kill the good stuff in you as well as the bad. The next step is to have blood cultures taken and if they show I'm bug free then I will be able to have a new Hickman line inserted. I'm hoping that the doctors have provisionally booked me a slot for this to be done on Friday afternoon which would mean that I could be home next Monday. I can't allow myself to get too excited because I know how hard it can be to get rid of a candida infection. When I've been on the IFU ward in St Marks in the past I saw some people in there with it who needed multiple courses of antibiotics to shift it so I'm hoping and praying that I won't be the same. I really don't think I could take another 2 weeks in here away from Hubby and the kids. So positive thoughts that the blood cultures come back clear. 

NB x






Labels:

Comments

Post a Comment

Popular posts from this blog

Caravan wankers

Over the last few years when I was stuck in hospital for long periods of time Hubby and I would talk about what we would do if I ever got ‘better’. During some of those times when I was so, so poorly the idea of just being at home for more than a few weeks at a time seemed like a far fetched dream. But I’m currently living that dream! And obviously I know I will never ‘get better’ but for these purposes ‘getting better’ meant being well enough to be at home, not in pain 24/7 and not in bed all day, every day. Not too much to ask now is it??  So in our talks, once I was at home and was well enough to do the real basic things like watch Big Fella play football, Big Girl play netball, go to Tesco, play with the dog, go to the cinema etc one thing kept cropping up. We would love to have a motor home and tour round the country. We talked about the places we would like to visit, how much Buddy the dog would love it and how it would give us a chance to reconnect with each other.  But...
1 comment
Read more

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sl...
1 comment
Read more

Trying to get vaccinated

When I was an inpatient recently I asked about getting the Covid vaccine because I’m classed as Clinically Extremely Vulnerable (ECV). Apparently other patients on the ward had gotten theirs but I was told that it wouldn’t be possible and that I would have to get in touch with my GP. Apparently staff within the hospital had been using the system to book vaccinations for friends and family by saying that they were an inpatient and as a result they were now only vaccinating staff who could show their ID badge.  I can understand that people are worried about the people that they love but to think that people abused the system in that way makes my blood boil.  So when I was discharged I rang the GP surgery and was told that they had absolutely nothing to do with the vaccination programme and that I would need to get in touch with NHS England. So I called NHS England and spoke to an adviser who told me that according to the system I wasn’t eligible for a vaccination. I explain...
Post a Comment
Read more