Skip to main content

Yummy, yummy in my tummy

So after 5 days here is the first food that's passed my lips. 


It was the microwave white rice you get in packets in the supermarket and after eating nothing at all for so long it felt horribly greasy and unpalatable. I ate about 1/5th because I didn't want to go from famine to feast and overload my stomach and bowels. It didn't cause me any real problems although I could feel my bowels waking up and working a little while after eating it. I suppose the next step is to eat a little bit more and see how I manage that. 

I've been onto St Marks today to try and get another appointment with my consultant down there. The more I think about it the more uncomfortable I am about transferring my care to Nottingham to a doctor that I have absolutely no faith in or respect for, especially when the team at St Marks are so amazing. I know that logistically it's going to be difficult but in my heart of hearts I'm sure that this is the right decision. I think I need to get a little bit better about asking for help rather than thinking that I will be fine just jumping on the train and going down there myself. My sister has said that she will take me if Hubby or Dad can't so I think I'm just gonna suck it up and do the journey even if I'm feeling as rough as a badgers arse on the day of the appointment. 

In other news, I had my last antibiotic dose 🎉🎉🎉🎉🎉🎉 and since then I've started to feel a bit more human. The dose that they give you in hospital to fight these bugs is like a super super strength one and I think antibiotics always make you feel a bit crap because they kill the good stuff in you as well as the bad. The next step is to have blood cultures taken and if they show I'm bug free then I will be able to have a new Hickman line inserted. I'm hoping that the doctors have provisionally booked me a slot for this to be done on Friday afternoon which would mean that I could be home next Monday. I can't allow myself to get too excited because I know how hard it can be to get rid of a candida infection. When I've been on the IFU ward in St Marks in the past I saw some people in there with it who needed multiple courses of antibiotics to shift it so I'm hoping and praying that I won't be the same. I really don't think I could take another 2 weeks in here away from Hubby and the kids. So positive thoughts that the blood cultures come back clear. 

NB x






Comments

Popular posts from this blog

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt.  Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to doo...

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...

The spoon theory

Have you heard of 'The Spoon Theory'? No? Neither had I before I got ill. Why would I have? I didn't spend my time trawling through the internet in search of lotions and potions and pills that might just make me feel a little bit better,  because I was well. I was out living life and having fun.  Don't get me wrong. I'm not saying that I don't have fun any more. I just have less of it, with fewer people and without the aid of alcohol!  The spoon theory was written by Christine Miserandino and she asks that when you reference the theory you add a link to her website, so here it is:  http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I  saw this tonight on Facebook and thought was a brilliant visual to help you understand the 'theory' (and my life) a bit better.  That really is what it's like having a chronic illness. But the trouble is you never know how many spoons you have when you wake up. My  body likes to play trick...