Skip to main content

World IBD Day 2015

Today is World IBD Day. So here's a few facts for you all...

Did you know that worldwide 5 million people live with IBD?

Purple is the international colour associated with IBD. 

IBD is the umbrella term used to cover Crohns and Ulcerative Colitis which are both inflammatory bowel diseases. 

UC only affects the large intestine but Crohns can affect any part if the digestive system, from the mouth to the rectum (bottom).

IBD is NOT the same as IBS (irritable bowel syndrome) Although they may share some of the same symptoms, IBS does not cause inflammation, ulcers or other damage to the bowels. So when people say "I've got IBS, I know how you feel" it's a bit like saying "I've got a headache, I know how you feel" to someone with a brain tumour. 

You can't 'catch' Crohns or colitis although there are studies being done into whether it is genetic/hereditary. But don't worry- you won't get it from shaking hands with me. 

1 in 210 people in the UK live with IBD.

IBD not only causes problems in the bowel it can also affect joints and cause arthritis, it can weaken bones and lead to osteoarthritis and bone breakages, inflammation of the eyes, cause fatigue, liver inflammation, gallstones, ulcers on the skin, kidney stones, lung problems and delayed puberty/developmental problems in younger sufferers. 

There is around 2kg of bacteria living in your gut so the next time you're feeling a bit fat, you can blame it on the bacteria multiplying, not the cream cakes you've been eating! 

IBD is usually diagnosed between the ages of 15 to 30 with slightly more men getting diagnosed than women. 

Over 50% of Crohns patients and 20-30% of UC patients will require surgery within 10 years of diagnosis. 

There are treatments available but there is NO CURE. That's right, there's no cure for this terrible illness. Please help us to find one by donating as much or as little as you can afford. Text PURP19£3 to 70070 to help Crohns and colitis UK raise money. Or to target support directly into the UK's and possibly the worlds leading research hospital, St Marks, text STMK14£3 to 70070. You can change the donation amount from £3 to whatever you can afford. 

Even £1 will make a difference. If everyone that liked this blog page gave £1 then that would be nearly £200 raised just like that. 

For more information take a look at this website...

http://www.worldibdday.org

...and don't forget to wear purple today to show your support. 

NB x

PS I know my more academic readers would probably have liked me to reference where the information for these facts came from. But to be honest, life's too short and I can't do it on my iPhone which is what I write 99% of my blog posts on. All the stats and info is taken from reliable websites associated with IBD. 

Comments

Popular posts from this blog

Light at the end of tunnel

I’m sat writing this blog post in St Marks, the specialist bowel hospital in London. So much has happened in the last few weeks; it’s all been a bit of a whirlwind. But I finally feel like there is some hope at the end of the tunnel. Let me tell you why.  At the beginning of June I was admitted yet again to QMC in Nottingham with huge amounts of pain, my bowels not working properly and just feeling generally unwell. I had only been home a couple of weeks since the admission in May but I had been feeling so rubbish most of my time had been spent in bed. I had tried everything I could to stay at home but the pain had become so bad I was barely able to stand or take a few steps on my own.  I had expected to maybe be in for a week or two to get stronger pain meds and get back on my feet but I ended up being in for almost a month. They put me on morphine injections and ketamine but then stopped them when my heart rate dropped to 30 beats per minute and my breathing to 7 breaths a minute. Th

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sleep.

The wrong size line

I’m on the M1 heading back to Nottingham after a road trip to St Marks to get my line repaired. But this is me, and as usual it wasn’t a smooth ride. More like a bloody shit show. So what happened? Let me tell you… After being admitted to QMC in Nottingham on Sunday with a broken Hickman line I was taken down to Interventional Radiology on Monday afternoon to get my line repaired. Firstly, I couldn’t believe it was happening so quickly and secondly I didn’t want to get too excited because, well it’s me, and usually things don’t go according to plan. And sadly I right to rein in the excitement.  When the doctor came to consent me for the procedure it was for a replacement, not a repair. I assumed he had made a mistake so I told him I was there to get my line repaired and was definitely not there for a new one. He looked at me and said “I hate to be the bearer of bad news…” and that’s a sentence that never bodes well. He then went on to say that they didn’t have any repair kits and that