Skip to main content

Guest Blog- Sara

I'm Natalie's friend Sara - previously referred to in this blog as the woman who scared a car full of people with my terrible driving & lack of basic knowledge of car buttons and thingamajigs. 

I'm also the same person who threw up continuously when my husband trod on some open scissors and asked me to get the first aid box from the car. Poor man had to hop to the car and get it himself and pull the scissors out. I also traumatised numerous children once when my son cut his head open and I ran hysterically through the school, with blood spurting everywhere. A member of staff stemmed the small but gushing cut with one finger and all was calm again. Now why didn't I think of that! 

You get the picture, not the best person to rely on in an emergency! But if you are Natalie's friend, then it's highly likely you will have witnessed her fall very ill at one time or another and she will have needed help.

On several occasions, her calm and collected friends have not been available due to work or school commitments and she has called on me in an emergency and I have been absolutely terrified! She called me once when I had a full trolley of food in Tesco and in a tiny voice said "help me please". Natalie isn't prone to panicking so I knew she was in trouble. I told her not to panic as I shoved my trolley out of the way and ran to my car. 'All would be fine' I said and that 'I was on my way.' My hand was shaking so much I couldn't start the car. Then I realised maybe I should have called an ambulance. I called her back and asked her whether I should! Yes she said and the line went dead. Oh god, it must be serious. So I started to dial 999 and realised I couldn't remember her address - the address I sometimes pick her children up from when she is too poorly to go to school, the address I went to that morning.

"Calm down, calm down" I chanted out loud repeatedly. So I called another friend and asked for the address, but it took several attempts as my hands were still shaking. I got to the house and wondered how I could get in. I also wondered what state I would find her in. I saw her son was home and he let me in. 

I raced upstairs and there she was passed out on the bed with a raging temperature and in agony. It really was terrifying. Natalie awoke and her eyes were rolling and she was incoherent. I told her she would be absolutely fine and she had nothing to worry about and all the time I was thinking "this is really really bad this time...".

The paramedics arrived and asked to speak to me and said she was in a bad way and they were very concerned and could I contact her next of kin immediately. I called her husband and he raced home in record speed and I saw her visibly relax and calm down as he told her he was there, he loved her and wouldn't leave her and that nothing bad would happen to her. It was a very private moment that I shouldn't have witnessed and so I slipped out of the room.

This is one of a number of emergencies I have encountered. I have seen her pass out far too often. I don't know how she finds the courage and strength to carry on sometimes. Actually I do! Natalie does it for the love of her family and because she is stubborn and brave and giving up is not an option or in her vocabulary. 

The saddest part is that she and her family are so very used to her being so ill,  often in hospital more than out, line infection after line infection, fainting and collapsing. It's a cruel illness that shows no mercy despite the fact she has a young family and many plans and aspirations, just like the rest of us.

Natalie is so much more than her illness. Fiercely intelligent, funny, kind, friendly, stubborn, brave, generous, loving and have I mentioned STUBBORN? But you watch, that stubbornness and all her other qualities are going to keep her going on her journey and life is going to get better for her. How do I know? I just do. It will take time, but sometimes good things just have to happen to good people.

Sara x

Comments

  1. This has me in tears. Natalie is an inspiration to us all. Thank you for helping to look after her. X

    ReplyDelete

Post a Comment

Popular posts from this blog

Light at the end of tunnel

I’m sat writing this blog post in St Marks, the specialist bowel hospital in London. So much has happened in the last few weeks; it’s all been a bit of a whirlwind. But I finally feel like there is some hope at the end of the tunnel. Let me tell you why.  At the beginning of June I was admitted yet again to QMC in Nottingham with huge amounts of pain, my bowels not working properly and just feeling generally unwell. I had only been home a couple of weeks since the admission in May but I had been feeling so rubbish most of my time had been spent in bed. I had tried everything I could to stay at home but the pain had become so bad I was barely able to stand or take a few steps on my own.  I had expected to maybe be in for a week or two to get stronger pain meds and get back on my feet but I ended up being in for almost a month. They put me on morphine injections and ketamine but then stopped them when my heart rate dropped to 30 beats per minute and my breathing to 7 breaths a minute. Th

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sleep.

The wrong size line

I’m on the M1 heading back to Nottingham after a road trip to St Marks to get my line repaired. But this is me, and as usual it wasn’t a smooth ride. More like a bloody shit show. So what happened? Let me tell you… After being admitted to QMC in Nottingham on Sunday with a broken Hickman line I was taken down to Interventional Radiology on Monday afternoon to get my line repaired. Firstly, I couldn’t believe it was happening so quickly and secondly I didn’t want to get too excited because, well it’s me, and usually things don’t go according to plan. And sadly I right to rein in the excitement.  When the doctor came to consent me for the procedure it was for a replacement, not a repair. I assumed he had made a mistake so I told him I was there to get my line repaired and was definitely not there for a new one. He looked at me and said “I hate to be the bearer of bad news…” and that’s a sentence that never bodes well. He then went on to say that they didn’t have any repair kits and that