Skip to main content

Panic stations!!!


This morning I got multiple texts from Big Girl in a panic that she had missed the deadline to register for the next Loughborough Lightning netball academy trials. She’s netball mad and having been in their U17 academy she wants to try out, and hopefully get a place, in the U19 academy when the training starts again in September. Being in hospital I’ve not been checking emails so it was possible that an email had been sent and I hadn’t seen it. I quickly check online on the Loughborough Lightening website and see that it says that registration is now closed. 


Oh shit! 

Feeling like the worst Mum in the world I fire off emails to all the contacts I have at Loughborough and ring Hubby in tears. He’s convinced that the trials aren’t until September so maybe registration is closed because it’s not open yet? I bloody hope so. 

The guilt I feel at maybe having overlooked something so important to Big Girl is overwhelming. I actually feel physically sick. But there’s nothing I can do about it for now apart from tell her that I’m sorry and that I will do my best to fix it if I’ve fucked up. 

I get an email this afternoon from J, her academy coach for this season that’s just finished.  She writes that the U19 trials won’t take place until the U15 and U17 ones are completed which won’t be until around July time. I screen shot the email and send it to Big Girl, relief washing over me. 

This is an example of the juggling that Hubby and I have to do on a daily basis, that’s made worse when I’m in hospital. There aren’t 7 days in my week; there might only be 1 or 2 good days. And on these good days I will try to go out, do housework, spend time with family or tackle the life admin that piles up from the rest of the week. 

Being in hospital is tough for me. I’m away from my family and I’m obviously not well if I’m an inpatient. But I actually think it’s much harder for Hubby than it is for me. He still has to work, often 12+ hours a day, but he also has to be both Mum and Dad. He has to pick up the slack around the house- cooking, cleaning, walking the dog etc. He becomes the taxi to the teenagers, a job my Dad usually helps with when him and Mum aren’t sunning themselves on a Mexican beach (not that I’m jealous or anything 😉) And then there’s the emotional rollercoaster to navigate, that other parents of teenagers will both empathise and sympathise with. 

On this occasion, it’s ok. The fuck up did not actually happen. But there’s always that fear at the back of my mind that one day it will. My illness dictates so much of what can or cannot happen in my life and by extension that of Hubby and the kids too. I try really hard not to let my illness define me, but it’s hard. 

Sometimes I wonder who I would have been if this illness hadn’t chose me to be its victim. What could I have achieved? Would I be happier? Or has this struggle made me into a kinder, more compassionate person? I guess we will never know. 






Comments

Popular posts from this blog

New car smell

After everything that’s happened over the last 5 weeks not many days have been good days but today was. I will write a blog post about everything that happened but that’s for another day!  Today I went to pick up my new motability car and got to breathe in that new car smell. I am now the proud lease holder of this lovely Volvo XC40.  To be honest, part of me wasn’t sure whether to write a blog post about getting the new car with everything that’s been going on with the disability benefit reforms. There’s been so much written about motability cars on social media but a lot of it is misinformation and hate and that made me nervous to write this post. But I figured that most people reading it are friends and family and understand my need for the car. But for those that don’t let me explain a bit about how the motability scheme works.  I am lucky enough (or unlucky enough depending on how you look at it) to claim PIP- personal independence payment. This benefit is designed t...

The germs have got me 🦠

Being on azathioprine, influximab and prednisone is helping to control this recent Crohns flare up. But unfortunately they work by wiping out my immune system making me more susceptible to all the bugs doing the rounds. I refuse to stay at home and be held hostage by these meds though- for me they are there to give me my life back, not to make me a prisoner in my own house, so the inevitable has happened and I’ve got a cold.  ‘It’s only a cold’ you might think, but with no immune system to fight it off this cold has made me pretty poorly. Yesterday I couldn’t get out of bed and felt so, so ill. I was coughing and struggling to breathe so I’m pretty sure I’ve got a chest infection too. But I can’t confirm that because apparently even being immunocompromised with a suspected chest infection is not enough to see a GP these days!  I spoke to the receptionist at the GP surgery this morning who told me that all the urgent appointments for today were gone (and this was at 8.25am, aft...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...