I’ve been quiet this week cause I’ve been really poorly. On Monday I didn’t feel good so decided I would have a lazy day and I slept for most of it. But then by Monday evening my pain had gone through the roof and I was in agony. I didn’t sleep a wink and by Tuesday’s ward round I was in the bed crying in pain. The doctor increased my pain relief and said we’d “need to ride it out”. But instead of getting better the pain just got worse and worse to the point that I couldn’t get out of bed and make it to the loo which is three steps away without the nurses helping me. And talking of the loo I realised I hadn’t opened my bowels since Sunday. So this was looking like another bowel obstruction. I spent Wednesday in agony and when the consultant saw me on Thursdays ward round he couldn’t believe how unwell I was. He said he would get straight on the phone to the surgeon and tell him he needed to ‘sort me out’ because this could not continue. The surgical doctors came to see me and decided that they wanted another CT scan to see what’s going on which I had done on Friday morning. On Friday afternoon one of the gastro drs came to tell me the CT report was in and it showed that my bowel is much, much worse since my last scan (which was only at the end of April) and that there was a chance I may need emergency surgery over the weekend. This would be a nightmare scenario as I would end up with whoever was on call performing the operation and they may not have the experience or expertise of dealing with a patient like me with such complicated surgical history and I could end up being left in a mess. Hubby was allowed to come in and visit me today and it was lovely for him to lie on the bed with me and just cuddle me; I really needed that cuddle. So I’m hoping to make it through the weekend without needing surgery and then hopefully see Mr E, the surgeon who was originally willing to operate on me next week. I’m obviously nil by mouth so all my meds are IV going through the Picc line. I’m still on the antifungal medication but Friday night they started the TPN again. The heat isn’t helping and I just feel really crap. It seems like it’s one step forward and two steps back.
After everything that’s happened over the last 5 weeks not many days have been good days but today was. I will write a blog post about everything that happened but that’s for another day! Today I went to pick up my new motability car and got to breathe in that new car smell. I am now the proud lease holder of this lovely Volvo XC40. To be honest, part of me wasn’t sure whether to write a blog post about getting the new car with everything that’s been going on with the disability benefit reforms. There’s been so much written about motability cars on social media but a lot of it is misinformation and hate and that made me nervous to write this post. But I figured that most people reading it are friends and family and understand my need for the car. But for those that don’t let me explain a bit about how the motability scheme works. I am lucky enough (or unlucky enough depending on how you look at it) to claim PIP- personal independence payment. This benefit is designed t...
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