Skip to main content

Pouchitis

I've got pouchitis. That's an infection in the j-pouch and it's not nice. The j-pouch is formed out of the small intestine and has to do the job of the rectum. The problem is that the small intestine isn't designed to hold poo so in some people it gets inflamed and ulcerates which then leads to infection. It causes bleeding, urgency and the need to go to the toilet. A lot. 

Over the last 2 weeks my bowels have not been great which I guess was the start of it all. I went back onto a really plain diet to see if that would help but last weekend I spent more time on the toilet than off so knew that it wasn't going to sort itself out. I've been getting up in the night 4, 5, 6 times and even falling asleep on the loo. It's left me feeling exhausted and drained and the pain is pretty bad too. It would probably be a lot worse if I hadn't recently had the ketamine infusion so that was good timing I guess. Once I realised that I was probably suffering from pouchitis I made an appointment with my GP to get some antibiotics. 

To treat pouchitis there are 2 antibiotics that are recommended. I couldn't remember which one I had been given before but I was pretty sure it began with T. 
"T?" asked the doctor "I don't think that it would be" so we looked on the St Marks website for information. 
"Metronidazole?" he said to me. 
"That's it!" I replied. 
"That doesn't begin with a T" he said looking at me like I was bonkers. 
"It's got a T in it!" I replied indignantly. 

So I started taking the antibiotics that evening and within half an hour I started itching. It began on the soles of my feet and spread upwards. I scratched until I bled and frantic with the itching and the pain from it I rang my parents to see if they had any antihistamine. It was 11.30pm so I woke up Hubby to go and fetch them. These are the advantages of living close to my parents I guess. I took the antihistamine and fell asleep. 

The next day I rang and spoke to my GP to let him know what had happened and get some different antibiotics. The only problem we now had was that I was already allergic to the other recommended antibiotic- of course I would be! So he prescribed a broad spectrum antibiotic and I've had no problems with it. The symptoms of the pouchitis have started to settle down but I'm still spending a lot of time on the loo. 

Last night I got up for the toilet and I must have fallen asleep. Nothing unusual there apart from the fact that I woke up when my head smacked the tiles on the bathroom floor. I must have been in a fairly deep sleep and fallen forward. With nothing there to stop me the first thing to hit the floor was my head and believe you me I woke up then!! 

My screams didn't wake Hubby up so I had to shout out his name a few times before he awoke from his slumber. He picked me up and helped me back to bed. I could feel my head throbbing and a bump was starting to appear. I took a couple of paracetamol and propped myself up with pillows so I could go to sleep sitting up because when I lay down the room started to spin. I woke up this morning with a nice bump, although not as big as I had thought it was going to be considering how hard I got the floor. I debated about going to the GP to get checked out but I reckoned he would only send me to A&E and I would be there hours only to be told there was nothing wrong. So instead I'm sat in a hairdressers chair finally getting my 4 month long roots sorted out. 

NB x





Comments

Popular posts from this blog

The spoon theory

Have you heard of 'The Spoon Theory'? No? Neither had I before I got ill. Why would I have? I didn't spend my time trawling through the internet in search of lotions and potions and pills that might just make me feel a little bit better,  because I was well. I was out living life and having fun.  Don't get me wrong. I'm not saying that I don't have fun any more. I just have less of it, with fewer people and without the aid of alcohol!  The spoon theory was written by Christine Miserandino and she asks that when you reference the theory you add a link to her website, so here it is:  http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I  saw this tonight on Facebook and thought was a brilliant visual to help you understand the 'theory' (and my life) a bit better.  That really is what it's like having a chronic illness. But the trouble is you never know how many spoons you have when you wake up. My  body likes to play trick...

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt.  Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to doo...

Swimming fail

I was discharged from hospital on Friday afternoon and within a few hours of being home I was out taking Big Girl to her netball training session. I didn’t feel great but Hubby had a load of work to do so I thought if I did the netball run it would take the pressure off him. Usually after dropping Big Girl off I go to my sisters house as she only lives 5 minutes from where netball training takes place but this week both her and her husband were out so I resorted to wandering the local retail park. I was hopeful that I would be able to get some Christmas presents as I haven’t bought a single thing yet but I just couldn’t get into the mood for shopping. I think being tired and in pain didn’t really help so in the end I went back to the car and sat and watched Netflix.  Driving home that evening the pain got worse and by the time we arrived home I was in agony. I crawled up the stairs and into bed hugging the sick bowl. Part of me was wondering if I would end up having to go back into...