Skip to main content

I'm home...but only for a few sleeps

I was discharged yesterday! Who would have thought it when this time last week they called the priest and I woke up to find him anointing me. I thought I was getting the last rites 😧 but I was only getting the anointing of the sick. Phew. But that's bad enough. 

Anyway, I'm home. But not for long. I'm hoping to head off on my summer hols soon. So lots of packing to do. Not just the usual clothes, but medication, TPN, supplies, sharps bin, ensure drinks, hand wash...the list goes on and on. I got a new bikini- what do you think?



When I got discharged from hospital yesterday the first thing I did was surprise the kids by going and picking them up from school. The look on their faces when they saw me brought a lump to my throat and I had to try and hold it together in the playground. 

Today has been hot, hot, hot so I've spent the day in bed with the fan on. The kids have been fab, even letting me have a little sleep. They know not to cook anything, answer the door or do anything that might cause bloodshed when I'm out of it! I know it's unconventional summer holiday parenting but I've just got to survive the day! 

Before anyone rings social services, I did get up to feed them and imagine the horror when I saw my crisp drawer looking like this!


Now I know that Hubby has had a difficult job trying to hold it all together in my absence but really? REALLY? Did he go completely feral? Full order has been restored though. 


Had a little panic tonight when my TPN pump started alarming. It kept saying there was air in the line and despite me flushing it, it kept alarming. I rang the on call nurse and she helped me sort it out. Think I'm going to be totally neurotic about this line. I just can't face going back in and having to go through all this again. I know that if I'm going to get a line infection there's nothing I can do to stop it but I don't want to do anything that might encourage one or make it more serious. 

After falling asleep last night watching Mary Poppins in my bed snuggled up to the kids, poor Hubby had to sleep in Big Girls bed. Hoping tonight to go to sleep next to him. But no touching! It's far too warm for that! He's got to keep to his side of the bed. I didn't miss him that much!!

NB x
Labels:

Comments

Post a Comment

Popular posts from this blog

The spoon theory

Have you heard of 'The Spoon Theory'? No? Neither had I before I got ill. Why would I have? I didn't spend my time trawling through the internet in search of lotions and potions and pills that might just make me feel a little bit better,  because I was well. I was out living life and having fun.  Don't get me wrong. I'm not saying that I don't have fun any more. I just have less of it, with fewer people and without the aid of alcohol!  The spoon theory was written by Christine Miserandino and she asks that when you reference the theory you add a link to her website, so here it is:  http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I  saw this tonight on Facebook and thought was a brilliant visual to help you understand the 'theory' (and my life) a bit better.  That really is what it's like having a chronic illness. But the trouble is you never know how many spoons you have when you wake up. My  body likes to play trick...
Post a Comment
Read more

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt.  Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to doo...
Post a Comment
Read more

Swimming fail

I was discharged from hospital on Friday afternoon and within a few hours of being home I was out taking Big Girl to her netball training session. I didn’t feel great but Hubby had a load of work to do so I thought if I did the netball run it would take the pressure off him. Usually after dropping Big Girl off I go to my sisters house as she only lives 5 minutes from where netball training takes place but this week both her and her husband were out so I resorted to wandering the local retail park. I was hopeful that I would be able to get some Christmas presents as I haven’t bought a single thing yet but I just couldn’t get into the mood for shopping. I think being tired and in pain didn’t really help so in the end I went back to the car and sat and watched Netflix.  Driving home that evening the pain got worse and by the time we arrived home I was in agony. I crawled up the stairs and into bed hugging the sick bowl. Part of me was wondering if I would end up having to go back into...
2 comments
Read more