Skip to main content

Guest Blog- Liz and Jane

Sorry that this guest blog is late (again!). You see if was far too busy having litres of antibiotics pumped into me, getting dressed and then heading into London to load it up. 

This weekend I had arranged to meet up with 3 of my oldest friends. We've known each other since school but now are scattered all over the country. We try to get together at least once a year which doesn't sound like much but trying to coordinate four peoples diaries is often a bit tricky. What's app has made it so much easier to keep in touch and Facebook helps us to keep track of what's going on in our lives (and nosy at photographs)

But of course I'm in hospital so we had to change our plans slightly. I asked them if they would like to write something for Guest Blog Saturday so here you go. (If you're wondering what I got up to in big ol' London Town, don't worry, I will tell all in another post 😉)

In reality I feel like a bit of fraud writing a blog about someone I see once a year, at most, if lucky! But the  request to contribute to this is an honour.

I can only admit my ignorance to Natalie's struggles. Not because I don't care, or I don't want to help, but because I live 200 miles away and the impact or extent of what she goes through every day never really translated in what were a few brief texts, phone calls, and flying visits. This blog has opened my eyes. Not only to the unbelievable goings on but once again to her courage.

The cruelest thing I see is the battle around the illness. All those other testing, draining things that come with being so poorly. All the appointments, changing hospitals, different wards, the waiting, the let down and the missed opportunities to name a few. But by far the worst to read about, are the hundreds and hundreds of sad goodbyes Natalie and her family have to endure. I worry about the toll that takes the most.

The thing is with Natalie, nobody gets one over on her, she's always one step ahead, and there is no way she'd let herself be beaten.

I once witnessed her breaking broccoli florets from the stem in the supermarket because she didn't think she should be made to pay for an inedible item. It's that kind of tenacious attitude I remind myself of and I know it will get her through!

And, following her love of a bargain, today she has got a buy one get one free guest blog! That will make her very happy indeed!

Lizbo (Class of '98) xxx

Heading down to London on he train for 'Nats weekend', she suggested we all write a few words for her blog. I had planned a snooze, some browsing on the daily mail and some interesting chat with train strangers (I'm not from London, so it's allowed!). But as it was supposed to be her weekend, thought I best to oblige.

I say 'was', as you know Nat's back in hospital, though she's managed to pull of an escape for tomorrow, Whoooo.

How does having a friend with such a cruel and serious illness affect me - not a lot. I've known Nat since school and a group of us have remained very close friends, but I live in the lake district now. Other than reading her blog, marvelling at her resilience and optimism, being immensely impressed and proud with how her, Hubby, the kids, family and friends cope and help with it all, I don't do a lot. 

Sure there have been a few meet ups and events she's missed - her own hen do springs to mind! But I don't feel our friendship has suffered. Nat might feel differently though - the odd ridiculous photo of me in fancy dress, an annoying text or work-promoting present in the post, pail in comparison to all the help and support she gets from other friends, particularly those in London.

I just hope Nat knows I love her and am very proud to call her my friend.

Jane 

Comments

Popular posts from this blog

New car smell

After everything that’s happened over the last 5 weeks not many days have been good days but today was. I will write a blog post about everything that happened but that’s for another day!  Today I went to pick up my new motability car and got to breathe in that new car smell. I am now the proud lease holder of this lovely Volvo XC40.  To be honest, part of me wasn’t sure whether to write a blog post about getting the new car with everything that’s been going on with the disability benefit reforms. There’s been so much written about motability cars on social media but a lot of it is misinformation and hate and that made me nervous to write this post. But I figured that most people reading it are friends and family and understand my need for the car. But for those that don’t let me explain a bit about how the motability scheme works.  I am lucky enough (or unlucky enough depending on how you look at it) to claim PIP- personal independence payment. This benefit is designed t...

The germs have got me 🦠

Being on azathioprine, influximab and prednisone is helping to control this recent Crohns flare up. But unfortunately they work by wiping out my immune system making me more susceptible to all the bugs doing the rounds. I refuse to stay at home and be held hostage by these meds though- for me they are there to give me my life back, not to make me a prisoner in my own house, so the inevitable has happened and I’ve got a cold.  ‘It’s only a cold’ you might think, but with no immune system to fight it off this cold has made me pretty poorly. Yesterday I couldn’t get out of bed and felt so, so ill. I was coughing and struggling to breathe so I’m pretty sure I’ve got a chest infection too. But I can’t confirm that because apparently even being immunocompromised with a suspected chest infection is not enough to see a GP these days!  I spoke to the receptionist at the GP surgery this morning who told me that all the urgent appointments for today were gone (and this was at 8.25am, aft...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...