Skip to main content

Running on empty

The last few days I've experienced fatigue like never before. Doing even the simplest things leave me feeling exhausted and about to collapse. 

I think it's probably because at the moment my diet exists of eggs and rice and my attempts to include anything different have a 100% failure rate. I've had to cut out the Ensure milkshakes as they're hurting my tummy and instead have switched to the Ensure juices which I have to say are pretty horrid (but a necessary evil at the moment). I can't manage cheese and roast potatoes so I don't know if its dairy that is causing the problem or the fat in the food. 

Today I'm having mash and gravy and if that goes ok then I might try sweet potato mash and see how I go with that. 

On Friday I went to the pharmacy to collect my prescriptions. I had contemplated walking but it was too far so my bestie gave me a lift. Good job too as I had 7 carrier bags full of medication and there's no way I would have been able to carry them home. The pharmacist even had to help me carry them to the car cause I couldn't manage them, they were so heavy!

When we got home we counted that I had 91 bottles of Ensure...that should keep me going for a little while!!


But remember the calorie shot that costs £5 a bottle that the GP was reluctant to give me? It was only out of stock! Apparently there's a manufacturing problem with it at the moment and they don't know when it will be available to order in again. 

So I feel like I'm running on empty at the moment. I'm losing weight which on one hand is good but on the other it's probably due to muscle wastage because I'm not able to physically do much. 

I'm going to try and get out for some little walks next week with the kids as it's half term and if we stay in for the week we will all end up going stir crazy. Luckily my sister-in-law is on the M1 as I type, driving down to help me for half term. She's a teacher so off school too and she's bringing her 2 kids so Big Fella and Big Girl are very excited that cousin 1 and cousin 2 will be here for a massive sleepover. I'm sure the house will be complete chaos but full of laughter and love which is what makes it a home. And I wouldn't want it any other way. 

NB x

Labels:

Comments

Post a Comment

Popular posts from this blog

The spoon theory

Have you heard of 'The Spoon Theory'? No? Neither had I before I got ill. Why would I have? I didn't spend my time trawling through the internet in search of lotions and potions and pills that might just make me feel a little bit better,  because I was well. I was out living life and having fun.  Don't get me wrong. I'm not saying that I don't have fun any more. I just have less of it, with fewer people and without the aid of alcohol!  The spoon theory was written by Christine Miserandino and she asks that when you reference the theory you add a link to her website, so here it is:  http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I  saw this tonight on Facebook and thought was a brilliant visual to help you understand the 'theory' (and my life) a bit better.  That really is what it's like having a chronic illness. But the trouble is you never know how many spoons you have when you wake up. My  body likes to play trick...
Post a Comment
Read more

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt.  Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to doo...
Post a Comment
Read more

Swimming fail

I was discharged from hospital on Friday afternoon and within a few hours of being home I was out taking Big Girl to her netball training session. I didn’t feel great but Hubby had a load of work to do so I thought if I did the netball run it would take the pressure off him. Usually after dropping Big Girl off I go to my sisters house as she only lives 5 minutes from where netball training takes place but this week both her and her husband were out so I resorted to wandering the local retail park. I was hopeful that I would be able to get some Christmas presents as I haven’t bought a single thing yet but I just couldn’t get into the mood for shopping. I think being tired and in pain didn’t really help so in the end I went back to the car and sat and watched Netflix.  Driving home that evening the pain got worse and by the time we arrived home I was in agony. I crawled up the stairs and into bed hugging the sick bowl. Part of me was wondering if I would end up having to go back into...
2 comments
Read more