Skip to main content

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt. 



Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to door. I would rather spend a bit of money but save my energy for seeing the kids later. 

The kids have no idea that I might be coming home today; they still think that I'm having 14 days of antibiotics. Hubby and I decided not to tell them incase at any point the doctors changed their minds. We've learnt from mistakes we've made in the past that it's better to surprise the kids by coming home early than disappointing them by having to stay longer. The kids are with Hubby's parents today and I've been daydreaming about going round and surprising them. I can't wait to see the look on their faces. 

If I get home today I will have to come back either Saturday or Sunday to have blood taken from my Hickman line. This is to check that the antibiotics have done their job and all the nasty bugs have actually gone. And all being well I won't be back until my clinic appointment to see Dr2 in October. 

I did have to speak to the nurse in charge this morning though. Last night my pump alarmed saying there was air in the line. If air gets into your veins in a large amount it can be fatal so I buzzed the nurse. A student nurse that had been working on the ward came in and I asked her to inform the nurse. A few minutes later she returned and began to open the pump, taking the line out. Student nurses shouldn't handle IV's as you have to be a qualified nurse and complete another training course before you're able to put up drips, give IV medications etc. And lines such as Hickman and Picc's go straight into a vein into the heart so require even more training and careful handling so there's no way that she should have touched it. The nurse in charge was equally as horrified when I told her what had happened and couldn't stop apologising. Hopefully having spoken up will prevent her making a mistake with another patient that perhaps is too unwell or scared to challenge her. 

But before I go and pack my bags I had to share this photo with you. I love finding interesting and funny things in hospital and sharing them to make you smile. Hopefully this will do just that. This photo is taken inside the ensuite shower room that I've been lucky enough to have. 


Sensible request. Only trouble being... There is no door!


😄

NB x

Comments

Popular posts from this blog

Light at the end of tunnel

I’m sat writing this blog post in St Marks, the specialist bowel hospital in London. So much has happened in the last few weeks; it’s all been a bit of a whirlwind. But I finally feel like there is some hope at the end of the tunnel. Let me tell you why.  At the beginning of June I was admitted yet again to QMC in Nottingham with huge amounts of pain, my bowels not working properly and just feeling generally unwell. I had only been home a couple of weeks since the admission in May but I had been feeling so rubbish most of my time had been spent in bed. I had tried everything I could to stay at home but the pain had become so bad I was barely able to stand or take a few steps on my own.  I had expected to maybe be in for a week or two to get stronger pain meds and get back on my feet but I ended up being in for almost a month. They put me on morphine injections and ketamine but then stopped them when my heart rate dropped to 30 beats per minute and my breathing to 7 breaths a minute. Th

The light at the end of the tunnel is a train

Last week was a busy and pretty crappy week for me health wise. I had to go and have blood tests done with the nutrition nurses and I had two hospital appointments; one with the gallbladder surgeon in Nottingham and the other with colorectal surgeon at St Marks. I was hoping to have at least one surgery date to write in the diary following these appointments but I came home empty handed on both occasions. Here’s what happened.  I began noticing over the last few weeks that I’ve started feeling really crappy. I’m feel lucky to have been at home for the last 6 months and I have been the most well I have been for years but it felt like things had shifted slightly recently but I couldn’t quite put my finger on it. But years of being sick means I know my body and I can tell when something isn’t right. I have been feeling permanently exhausted and having way more bad days than good. I’ve gone back to spending 2, 3 or more consecutive days in bed, unable to do anything but watch tv and sleep.

The wrong size line

I’m on the M1 heading back to Nottingham after a road trip to St Marks to get my line repaired. But this is me, and as usual it wasn’t a smooth ride. More like a bloody shit show. So what happened? Let me tell you… After being admitted to QMC in Nottingham on Sunday with a broken Hickman line I was taken down to Interventional Radiology on Monday afternoon to get my line repaired. Firstly, I couldn’t believe it was happening so quickly and secondly I didn’t want to get too excited because, well it’s me, and usually things don’t go according to plan. And sadly I right to rein in the excitement.  When the doctor came to consent me for the procedure it was for a replacement, not a repair. I assumed he had made a mistake so I told him I was there to get my line repaired and was definitely not there for a new one. He looked at me and said “I hate to be the bearer of bad news…” and that’s a sentence that never bodes well. He then went on to say that they didn’t have any repair kits and that