I’m so fed up. I’m still feeling so poorly and have barely made it out of bed for almost 2 weeks now. I should be used to prolonged periods of time feeling ill and stuck in bed but since being discharged in November I’d felt the most well I had for years and I really quite enjoyed it. So to be back to this, well it’s hit me pretty hard. It’s not just feeling crap from this bug that’s got me down; my bowel has gone crazy. I’m in a lot of pain, going to the loo 20+ times a day and I think it’s because my steroid dose has reduced so I’m going to have to get in touch with the hospital and see if I can put the dose up. Again. According to my original discharge plan I should have been off the steroids weeks ago but whenever the dose gets below 30mg it all just kicks off. I don’t know how long I can stay on the steroids and I know that one of the side effects of long term use is that it affects your bones which is worrying as I already have osteopenia, the precursor to osteoporosis.
I got a letter from the hospital today saying that my recent blood tests aren’t great and I need to have some more done. Think they’re going to be checking for anaemia and low B12. Ironically I was going to call the GP ok Monday and ask to have bloods done because I feel so crap. I know I’ve had this bug that’s doing the rounds but I feel so weak I can barely manage the few steps to the toilet and my arms feel like they’re made of lead. I’ve also been sleeping for 4-6 hours in the day and still sleeping at night which was something that I had to do earlier in the year before I had the iron transfusion. Once I had a couple of those I felt better and got a bit of a doting in my step. Ok, maybe that’s a slight exaggeration but I didn’t feel like I was dragging my body round whenever I moved.
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