Skip to main content

I went Out Out!

I had a busy weekend. As well as shopping for a new Motability car Hubby and I went out on Saturday night. This is the first time we’ve been Out Out together since before the pandemic started and I was super excited. We were going to see one of our favourite bands, The Magic Numbers  at the Rescue Rooms in Nottingham. 

I was a little bit nervous as I’m still not 100% and wasn’t sure if I would be well enough to last the entire night. We had seen them at Rescue Rooms a few years back and so I knew it was standing only and that it gets very crowded. I had thought about taking the wheelchair so I would have somewhere to sit down but I didn’t want to spend the night staring at everyone’s legs- I wanted to be able to see the band on stage. But after about 30/40 minutes I was really struggling and got to the point where I felt like I was going to collapse. Just standing for that amount of time completely exhausted me so I ended up moving to the side and sitting on the steps by the merchandise table. So I spent the rest of the night staring at everyone’s legs but at least I made it to the end of the night. And what an amazing night it was! If you’ve never listened to The Magic Numbers you really should. 



When I got back I was so tired but I needed to connect my TPN feed up. I briefly considered not hooking up but I knew that would only make me feel worse the next day so I forced myself to do it before I slumped into bed. I didn’t wake up the next day until 1pm and oh boy, did I have an energy hangover! This is how I describe being completely devoid of energy following on from an event that’s wiped me out. Usually with an energy hangover my body hurts, I’m so tired I can barely string a sentence together and I need to spend a day (sometimes two or three) in bed recovering. But to have had a night out with Hubby made all the pain afterwards worthwhile. I just have to accept that if I want to enjoy the good days then I have to have the bad days that follow. I just hope that as I get stronger the good days start to outnumber the bad.



Labels:

Comments

Post a Comment

Popular posts from this blog

The spoon theory

Have you heard of 'The Spoon Theory'? No? Neither had I before I got ill. Why would I have? I didn't spend my time trawling through the internet in search of lotions and potions and pills that might just make me feel a little bit better,  because I was well. I was out living life and having fun.  Don't get me wrong. I'm not saying that I don't have fun any more. I just have less of it, with fewer people and without the aid of alcohol!  The spoon theory was written by Christine Miserandino and she asks that when you reference the theory you add a link to her website, so here it is:  http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I  saw this tonight on Facebook and thought was a brilliant visual to help you understand the 'theory' (and my life) a bit better.  That really is what it's like having a chronic illness. But the trouble is you never know how many spoons you have when you wake up. My  body likes to play trick...
Post a Comment
Read more

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt.  Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to doo...
Post a Comment
Read more

Swimming fail

I was discharged from hospital on Friday afternoon and within a few hours of being home I was out taking Big Girl to her netball training session. I didn’t feel great but Hubby had a load of work to do so I thought if I did the netball run it would take the pressure off him. Usually after dropping Big Girl off I go to my sisters house as she only lives 5 minutes from where netball training takes place but this week both her and her husband were out so I resorted to wandering the local retail park. I was hopeful that I would be able to get some Christmas presents as I haven’t bought a single thing yet but I just couldn’t get into the mood for shopping. I think being tired and in pain didn’t really help so in the end I went back to the car and sat and watched Netflix.  Driving home that evening the pain got worse and by the time we arrived home I was in agony. I crawled up the stairs and into bed hugging the sick bowl. Part of me was wondering if I would end up having to go back into...
2 comments
Read more