Skip to main content

Gone without me 😢

So right now Hubby and the kids are flying over Europe on their way to Germany. 



There will be an empty seat on the plane where I'm supposed to be sitting but instead I'm in my hospital bed typing this. I thought I was ok with it until I got texts from the kids... As I read them I struggled to hold back the tears. 


The top one is from Hubby replying to me. Then the second is from Big Fella (I've used the pink tash to block out his name as I like to keep the kids anonymous) The third one is from Big Girl. 


It's hard knowing that they're going to have a great week away. Of course I want them to have fun- it's just I would rather be there with them. The weather this week in Germany is hot, hot, hot (even hotter than here in the UK) and I had been worrying about dehydrating- well I don't have that to worry about now!


People have said to me "you'll be able to go in a few days if you're discharged" and in theory they're right. If I don't have a line infection and feel well enough then yes, I could fly. The problem will be whether I can get my TPN arranged. Like I've said before it's not just about throwing a few meds and some clothes in a suitcase. I have to transport a 2kg bag of fluid for every night I'm away plus the pump and equipment needed to connect and disconnect the feed to my Hickman line and just to make it extra challenging the feed has to be kept cold. This means it has to be specially packaged to go on the plane and this was all in place for today. Because I don't know when I will get discharged I can't tell the team that provide my feed when I would need it to be packaged up specially again and they need at least 24 hours notice just to get the ice blocks frozen! And it's a bank holiday so they will no doubt be shutting down on Friday until Tuesday morning effectively meaning that unless I know tomorrow when I'm going home and when I'm going to be flying I doubt very much it will be possible to get it all sorted. 

Never mind. I will look forward to chatting to the kids over FaceTime and them telling me about all the exciting things they've done. Next time I want a holiday I'm going to get Hubby to sort it all out without telling me so my body doesn't have the chance to rebel and spoil it all! 

NB x


Labels:

Comments

Post a Comment

Popular posts from this blog

Home today?

The antibiotics have finished now and last night my Hickman line was used for the first time. So far it seems to be working fine and if the doctors are happy with it when they do the rounds later this morning I will be able to go home. Today! Yay! Of course I'm excited to perhaps be going home but I'm also relieved as my poor veins have just about had it. I never really have any decent veins in my hands and arms and the few that can be used have been well and truely pricked to death. It's got so bad that I'm now having cannulas put in my feet. And yes, it did hurt.  Hopefully later I will be packing my bag and going home to Hubby and the kids.Unfortunately everyone is at work today so if, no, when I get discharged later I will have to make my own way home. Nottingham has a really good transport system, including a tram stop at the hospital but I don't think I'm up to using public transport today. I'm going to splash out on a cab that will take me door to doo...
Post a Comment
Read more

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...
Post a Comment
Read more

The spoon theory

Have you heard of 'The Spoon Theory'? No? Neither had I before I got ill. Why would I have? I didn't spend my time trawling through the internet in search of lotions and potions and pills that might just make me feel a little bit better,  because I was well. I was out living life and having fun.  Don't get me wrong. I'm not saying that I don't have fun any more. I just have less of it, with fewer people and without the aid of alcohol!  The spoon theory was written by Christine Miserandino and she asks that when you reference the theory you add a link to her website, so here it is:  http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I  saw this tonight on Facebook and thought was a brilliant visual to help you understand the 'theory' (and my life) a bit better.  That really is what it's like having a chronic illness. But the trouble is you never know how many spoons you have when you wake up. My  body likes to play trick...
Post a Comment
Read more