Skip to main content

One year on

Today is a really significant day in my recovery. It was exactly a year ago when a friend sent me a picture of the kids on their scooters for scoot/cycle to school day and it broke my heart because I was in hospital and wasn't with them. Things in hospital had been really tough and it was kinda like the straw that broke the camels back. I remember being so down that day and feeling as though I had hit rock bottom (although sometimes I wonder how many rock bottoms there are for one person to have to hit in a lifetime!). I had no signal on the intestinal failure ward at St Marks so wasn't able to go online or message friends. I desperately wanted to get well enough and go home and be with Hubby and the kids; to take them to school and tuck them in at night and read bedtime stories but there didn't seen to be a light at the end of the tunnel. 

I remember what happened as if it were yesterday. I left the ward as I needed to get some air and I just couldn't be there any more, I felt like I had to get out. I ended up in the Costa they have at the hospital and I used their wifi to log into Facebook and see what was happening in the real world. 

And this is what I saw: 


And as I scrolled through my newsfeed I saw that all my friends had changed their profile picture to this:


So as I scrolled down all I saw was Don't give up time after time after time. And I realised that I wasn't in this alone. I had friends and family cheering me on, willing me to get better. And although I was in a dark place I knew that they were right. I couldn't give up. I had to keep fighting. 

And here I am, a year on and I'm still fighting. I'm home, yes. But I'm not better and never will be according to my doctors. So I have to adjust to a slower, simpler life without the rush and bustle and huge jobs list to get through everyday. But do you know what? It's not that bad. No, I can't work. I can't do a lot of things a used to be able to do. But I'm at home with Hubby and my kids which is where I so desperately wanted and needed to be. And today on scoot/cycle to school day my kids rode their bikes with me walking by their side. I never thought that I would be able to do that a year ago or even a few weeks ago. I've spent the day in bed recovering but it was worth it. 

It's amazing the difference a year can make. 

NB x


Comments

Popular posts from this blog

Holiday from hell

My first week in Cornwall was amazing. Me, Hubby and the kids spent the week near Porthleven along with all Hubby’s family in a big house with its own pool and hot tub. The kids had a great time with their cousins, we celebrated Big Girl’s birthday, went to the beach, ate together, played games in the evening and just generally had a wonderful time. It was the holiday I had dared to dream about while I was in hospital amd I couldn’t believe I was well enough to enjoy it. No, I wasn’t able to eat and drink but that was a small price to pay to be making memories with my loved ones. At the end of the week we packed up the car and drove to St Ives where we had booked a fisherman’s cottage one minute from the beach with my parents. My sister and her husband would be staying nearby and Big Girl’s boyfriend and his family were also staying in St Ives at the same time. I’m good friends with his Mum so I was really looking forward to having a great second week with even more of my favourite peo...

Disability benefits cuts

So in Rachel Reeves spring statement earlier this week it was confirmed that there will be massive changes to the benefits system including the way that PIP is assessed and changes to the health element of Universal credit.  As someone who is receipt of both PIP and ESA disability benefits I find this whole situation…  🔲 terrifying  🔲 baffling  🔲 rage inducing  🔲 disgusting  🔲 [all of the above] I honestly cannot believe that a LABOUR government is looking to balance the books of the country by taking money from some of the poorest and most vulnerable in our society. This is the sort of thing I would have expected the Tories to do but when I voted Labour I honestly thought that not only would they look after and protect the neediest but they would actually make things in our society better and fairer. How wrong I was. Looks like I’m going to have to get some ‘Fuck Labour’ merch to go along with my ‘Fuck the Tories’ stuff I already own!  Now I do b...

Dexa Scan

The highlight of my day, possibly my week, was leaving the hospital this morning for an appointment at the Treatment Centre, all of a few hundred metres away! I was diagnosed with endometriosis last year after a scan on my bowels picked up an ovarian cyst. For those who don’t know what endometriosis is it’s where tissue similar to the lining of the womb grows in places it shouldn’t. https://www.nhs.uk/conditions/endometriosis/ I didn’t realise I had it because any pain below the waist I always attribute to my bowel problems. The gynaecology consultant said that they would normally carry out a laparoscopy (keyhole surgery) to formally diagnose and see the extent of the endometriosis but because of all my previous bowel surgeries this wasn’t an option. So the decision was made to give me Decaceptyl injections to put me into an early menopause. Doing this stops the womb lining from growing and from contracting when you have a period and therefore helps to reduce the pain. I have the injec...