Today marks two important milestones: firstly my Hickman line is 1 year old and I have managed to stay out of hospital for a year too! I think this is the first Hickman line I’ve had that has made it to its first birthday, so this is quite a big deal. Most people have their lines in for years and years with no problems but in the past mine have blocked, split or become infected causing me to rack up a grand total of 17 lines in 10 years. But maybe my luck is changing… And the fact I’ve been at home without any inpatient hospital stays for a whole year is a milestone I didn’t think I would see. 2019-2023 was a particularly difficult four years where on average I spent more time in hospital than I did at home. And even when I was at home I was so ill I couldn’t get out of bed. There were some times during that period when I didn’t think I would live to see another Christmas because I was so, so unwell and I couldn’t see how I would ever recover. It was a long, hard slog and there were
It’s been a while since I wrote a post. Not because I’ve been poorly and in hospital but because I’ve been well and living life! Don’t get me wrong, I haven’t magically been cured and it’s not all sunshine and roses but things are probably the best they’ve been in years. I’ve managed to stay out of hospital (other than for appointments) for over 9 months now which at one point seemed like an impossible dream. I’m even daring to wonder if I will make it to the magical one year mark but it feels like I will jinx myself if I think about it let alone talk about it! So what have I been doing? I’ve done what most people would consider the boring, everyday stuff that I so desperately wanted to do when I was an inpatient. I’ve been to the shops, sorted out some life admin at home, planted some flowers in the garden and planned a summer holiday. I’ve watched Big Fella play football, went to a gig with Big Girl and to the cinema with Hubby. I’ve sat down to family meals, had breakfast in Wether